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Has anyone yet accessed the full paper that started this thread?

yes and I'm curious to see what happens next.

Oh, I see that. I will write a letter and post it to them when I get around to it, noting that the LP process has an editor's note that essentially confirms it's an ethical and methodological disaster. I will address it to Fiona Godlee pointing out that this study she refuses to retract...

Trish, I don't see LP mentioned in the GOSH brochure. did I miss something?

Ha, yes! last week. We're pretty much at the end, I think.

Uh, it's hard to express what it felt like when I just checked and saw that round number.

I love that shirt. I feel bad that I don't travel with it and wear it when I do this or that, but the reason is I tend to lose things very easily. So I could certainly use a spare one of that shirt--one to take and wear at events or whatever, and one to leave at home.

In UK science in this domain, it seems, anything is possible.

I think this is hard for them. If they give to me, they'd be asked to give to anyone doing something that seems worthwhile. I assume they have politics that govern these kinds of things. I can understand why the main groups--Action For ME and ME Association--would have difficulty with that. I...

I have certainly thought of the link in terms of "alternative facts"--like the alternative fact that I am a "former journalist."

Well I should be back in June...would love to set something up. Who do I talk to? I need to develop a new talk or at least expand into MUS, I think.

Good one! I haven't seen it. But I don't know if it would work for UK people. Would it? Do Brits know Lost in Space? Well, it wouldn't work for anyone under 60 maybe either!

was that the one with Bill Mumy before he was on Lost in space?

Well I have to say I'm taking somewhat of an international view here. And I prefer to put an optimistic spin on things when I can. In the UK, I would say things are still largely stuck at the establishment level, that's probably true. And I do get concerned in the UK that the IAPT/MUS movement...

And that claim was ridiculous, since she swapped the outcomes in a way that produced the better results.

I'm a bit perplexed by this. Even if research is done in short order, it takes time to analyze it, write it up and get it peer-reviewed and published. I mean, that could take well over a year, if not more. So how do they know any of this data will be ready in time for consideration? Or is this...

Ah, good point! I should have cc'd Professor Hotopf as well on this latest letter.

Yes, that's definitely part of the change. But US participation was low as well the first year I crowdfunded, two years ago, and that was before the CDC did that.

I also think in US this past week folks have been distracted by advocacy week and the NIH gathering. It's hard to focus on too much at once.

The small absolute numbers are always surprising to me, but this has been the pattern the two previous years. The US always lags behind UK. I agree with Jo's point here, and besides that the great majority of the blogs are about the bad UK research (with nods to bad research in Netherlands...