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  1. W

    ME Association: Speak Up for M.E. in the General Election: Contact Your Candidates!| 19 November 2019

    Exactly. Just when I'd written to mine about my caree's PIP appeal, too. Boris' timing sucks. Mind you, the MEA mentions writing to candidates, not MPs. Another aspect people might like to tackle is the current disability benefits system in relation to longstanding and variable illnesses...
  2. W

    Scottish MP Carol Monaghan and her work for people with ME/CFS

    Quite. I approached my caree's MP in relation to her PIP appeal shortly before the general election was called. It is a bit of a quandary.
  3. W

    Trying to schedule different meds etc is a pain in the butt.

    Have you read the "thou shalt nots" for Vit D pills? I think they probably vary a bit from manufacturer to manufacturer, but they do my caree's head in!
  4. W

    Eating improves exertion induced fatigue and symptoms of orthostatic intolerance

    I suspect. I find this too (without having ME), but the response time is far too quick for it to be real. Eating something sweet in my case can ward off a migraine-like headache, feeling sick, and various other things.
  5. W

    Trying to schedule different meds etc is a pain in the butt.

    If you're overthinking, then so's my caree :( If I don't post here soon, chase me up and I'll ask her what she's worked out.
  6. W

    UK: PIP appeals - advice, recommendations?

    I've posted about a petition to change the assessors and assessment process for PIP and ESA here: https://www.s4me.info/threads/uk-petition-change-the-dwp-benefits-assessments-system.12009/
  7. W

    UK petition - change the DWP benefits assessments system

    Petition to stop contracting out DWP health-related benefits assessments and make the system fairer: https://petition.parliament.uk/petitions/274312/signatures/new UK citizens only.
  8. W

    UK: Disability benefits (ESA and PIP) - news and updates up to end of 2020

    And gee, look at what one of the most recent posts is: That is why we've been battling for over a year now to get PIP for my caree!
  9. W

    Obtaining work-related disability benefits in the UK: ESA and UC general guidance and advice

    Thanks, Simbindi. But it doesn't go as far as appeals, by the look of things :(
  10. W

    Cognitive-behavioural therapy v. mirtazapine for chronic fatigue and neurasthenia: randomised placebo-controlled trial (2008) Stubhaug

    Does it really do that, sb4? I can't see increased adrenaline levels being compatible with restful sleep. Now I come to think of it, my caree has been complaining about feeling as though she's got more adrenaline/cortisol or something in her system since she went on to the increased dose of...
  11. W

    Pain, numb stiff feeling in the hands and fingers.

    I had mine operated on when I was a child. I wonder if that's something they still do? You do have my sympathies.
  12. W

    "Positive Health Statement" - Job Centre Plus

    I don't think they're comparable, are they? Anyway, the tribunal has asked for the paperwork for her ESA application from the DWP, so presumably they'll be able to compare.
  13. W

    "Positive Health Statement" - Job Centre Plus

    I don't think we saw the report, just got the letter, went "thank goodness" and forgot all about it. Wish I could do the same with the PIP application :(
  14. W

    "Positive Health Statement" - Job Centre Plus

    Well, I put it in my notes on my caree's most recent two ESA applications, and she got Support Group. I suppose it might be debatable whether the two are linked, though.
  15. W

    Lack of curiosity

    If it's the UK we're talking about, GPs tend to be under so much pressure that I don't think many of them have time for, independent thinking, shall we call it?
  16. W

    ME/CFS services in the United Kingdom

    My caree was, but it amounted to CBT and GET as an inpatient at the Maudsley. Guess what the result was.
  17. W

    UK: PIP appeals - advice, recommendations?

    It's an absolute disgrace. I probably mentioned above that if I were a London Borough or two over I'd have loads more options. Coverage ought to be more or less the same throughout the country.
  18. W

    UK: PIP appeals - advice, recommendations?

    (BTW, I've added to my post #23)
  19. W

    Norwich Science Festival Week - An Update on ME Research 25th October 2019

    What's a Centre of Excellence for ME? Is there one in Norwich?
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