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*Snorts derisively* In summary - We have decided to judge these people for absolutely no reason other than the fact that society lets us. Now we're getting away with treating them like second class citizens let's add insult to injury. Literally. That or it's a bet. Just how much stupidity...

I'm happy for Helen Nicholls that she improved. However according to multiple patient surveys GET only provides some improvement for a minority (some can be a very tiny amount), no change in others and the possibility of harm for the majority & that wouldn't be acceptable with a drug. 25+...

Yep, it's a very binary view. So many contradictions in society's view of health. Before medicine became more accessible & advanced it wasn't unusual for people to be chronically ill. That was just life. These days for an illness to be serious you have to be at risk of death. Yet even though...

Absolutely! The phrase "kicking the can down the road springs to mind". The likes of Wessely, Sharpe, Carson, Chalder etc., whether intentionally or not, have fed into the establishment view that fobbing ME patients off with bad research, treatments that don't work (at best)& put patients into...

I agree. Why would you fake the condition that is most likely to end up with you being accused of faking it? Surely, if you are of an age to drive googling (anything from toddler+ these days) you would do a little research to get maximum return for your faking efforts. So, be you parent or...

I agree doctors should know better. Especially doctors who listen to their patients. However, from experience of family members with very disabling long term conditions and my own experience it strikes me that while doctors know a lot about certain diseases, physiology and so on, they often...

Thyroid UK have this page - https://thyroiduk.org/hyperthyroid-basics/graves-disease/ One suggested treatment is beta blockers while another approach mentioned is use of "block and replacement" drugs. It doesn't state what the blocking drug might be. It does mention a drug called...

My sister was diagnosed with Graves disease several decades ago and was treated with carbimazole. I don't think she was terribly happy on it. She went on to develop an autoimmune disease and one of the medications for that suppresses thyroid output so her carbimazole was no longer needed...

I don't want to make assumptions about your age etc @Squeezy but there is a possibility that women with ME may go through menopause a little earlier and be more likely to suffer complications like hormonal imbalance. Perimenopause can start a good decade before the onset of menopause. The...

Re the blood sugar - I get tremors when I need to eat but while they may initially be most obvious in the hands, they quickly become felt throughout the body & are accompanied by feeling very weak. I don't know if others experience this differently.

As @strategist says a couple of people pretty much just decided that might be the case and then set about building their careers doing their darnedest to prove themselves right. They've maintained these abnormal illness beliefs by sneakily redefining other people's definitions of the disease so...

Well done @PhysiosforME! :thumbup:

Hi @Squeezy :hug: This may not be at all relevant to you but just in case ... I had tremors ranging from I can feel but barely see 'em through to having difficulty eating. I have had similar tremors in the legs & feet. Usually this happened when I was doing too much of a repetitive...

Definitely matches my experience. It would be marvellous if there were some way of measuring or defining pre illness performance as different individuals vary. This was something I was very good at pre illness. I could keep not only where I was in relation to project milestones clearly in my...

Thank you for sharing the information. I really hope you see some improvement soon. :hug:

I do think this is well worth the effort, if you are well enough & able to during encounters. I do believe that many doctors are quite sincere in their efforts to be helpful they just have no clue as to how badly their whole.profession has been mislead by the BPS crew and the NICE guidelines...

I guess it depends on whether you want information going forward or historical records. I think mist consultants will send you a copy of test results and letters to your GP if asked but not the records themselves. I would imagine you woukd need to approach the local health authority. Patient...

Ah! Must be the benefit of all that exercise...... Unlike other 90 year olds I know who usually attribute it to drinking at least one glass of good whisky in the evening! :laugh:

The very fact this Professor Sir Muir Gray individual is giving strangers medical advice on twitter tells us all we need to know about his level of interest in the health and safety of those he's tweeting to & his integrity as a doctor.

Indeed. A cynic might even think it was deliberate. :whistle: