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Interesting that the cut off dates are 18-50. Although a friend became a Mum at 18, is it not a much younger than usual age to be considering becoming a parent? Why cut the age off at 50? There are a number of women older than 50 who had to decide not to have children. They also have some...

On a good cognitive day and in the right frame of mind I can defend myself very & argue my case very well in front of a doctor. That doesn't mean a damn though. One thing I have learned from my working life that is very transferable to being an ME patient - You cannot change someone else's...

In theory you do have a choice but in practise it's not quite so simple. The GP (primary care doc) is the gateway to specialist services. The GP will usually decide which speciality you'll see & may want to refer you to a specific doctor, the health authority may refuse to fund you seeing a...

Something else occurred to me. Now I'm not saying this is true of everyone or even the majority of people who are accepting of such a diagnosis. I am also not denying that some people have a great deal.of trauma that continues to affect them, I just don't believe I'm one of them. I also...

it's good to hear from.you & that you're back home again @Graham! Fingers crossed these antibiotics do the trick. Gentle :hug:

Unfortunately there are some who know they are being told they are vulnerable/weak or mentally fragile because of past trauma and still welcome the diagnosis. It's as though it validates some previous suffering they've had. Ignoring the fact that it also dooms them to suffering in the present...

Yes.

Thank you @TiredSam for taking one for the team there & posting your synopsis. :thumbup: I was going to have a go at watching it....and decided to do something I would prefer & wouldn't annoy me instead.

I've put unclear because sometimes it is and at others it isn't. I think I was like that pre ME too. At times, especially the better times, I barely startle at all. I have had someone jump out at me late at night, outside when leaving a friend's house expecting me to scream. Gobsmacked when...

i agree. ME is a marathon rather than a sprint and sometimes, when we have enough wiggle room to make a choice, we have to balance our mental health needs with those of physical health. For some, pre covid lockdown, that might be a simple coffee out with a friend, or sitting outside our...

[Bolding mine] Agreed but as often as not it's not necessarily a choice. Lack of support be it financial or physical often means that if you do get a window when you are able to do something - shower, get in to a docs appointment, put a laundry load in, or simply brush your teeth, you have to...

Yep, says it all. As the video about Holgar highlights it's not just us patients caught up but our loved ones too. Holgar's brother did a great job describing the problems he faces but they are trapped in the nightmare alongside him. They have no choice but to struggle on unaided and the...

From the quote in @Kalliope 's post above Very creative techniques are the least of it, we know from PACE that they deliberately sought to avoid collecting meaningful data on harms. Then, because there was no data on harms, encouraged the assumption the treatments are safe and cannot harm. A...

I just cannot get my head around the logical inconsistencies, failure to acknowledge the possibility of harms and total disregard for patient wellbeing. Listen to and believe the patient - but only when they tell you what you want to hear. If they need to tell you there's a problem then they...

As an engineer who spent a lot of time on customer site I dispute this. Early on i wasn't really interested in the people & that machinery is so much more straightforward. I remember the day someone came to me reporting a fault that simply wasn't possible. I arrogantly told them so (I was...

Very small fry in the scheme of things but it makes a big difference to me. My GP surgery have changed the way they do things. No problem with getting a phone appointment, it's just you have to phone up at 8am as they are restricting appointments that can be booked ahead. So.you have to be...

No, I've searched for it before & tried to find the guy's name. I wish I'd made a note of it. :rolleyes::oops: It was the first time i realized the full financial implications of such a misdiagnosis. Once treated for MS all his symptoms, including the alleged psych ones, improved. He had...

Years ago I saw a documentary by a guy who worked as a documentary maker or producer about his experience with the healthcare system. He was having weird symptoms, ended up referred to psychiatry and staying as an inpatient at a psych unit. Each time he saw a different member of the "team"...

Yes. I believe both these statements can be true simultaneously. In the distant past, when working, I would be asked to visit clients sites where there was some fault or problem that couldn't be resolved locally for some reason. My job was entirely technical but I needed input from.the people...

I agree with everything you've said @strategist. I think the point made by Grete Lilledalen addresses a different issue though. 1) stop the antagonistic view of patients learning about it from each other. The patient's experience is credible and valid. You don't have any evidence that says...