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Great article. :thumbup: I would like to focus a little on the case histories used by Sharpe. We know that sexism in medicine is fairly firmly entrenched. Those of us who have been through the UK benefits system know how the most trivial details can be twisted as evidence to be used against...

Ah, but then you couldn't say you were providing treatment that was both evidence based and cost effective! :rolleyes:

The irony. Anecdotal report originating from one person of a potential threat made a decade ago and used since to block information that would normally be in the public domain. The PACE trial, also now a decade old, used to shore up smaller studies that informed the NICE guidelines and have...

I frequently find myself, even with all I know about pacing myself, getting up to do something I really want to get done. Either because it's a chore I don't want to do and want it over with or because it's something I'm really looking forward to. Then, thanks to factors beyond my control like...

This blaming the media for long covid business is yet another example of reverse causation as far as I can see. Virtually nobody except the ME community even considered the possibility of long term health issues post covid. The very people - those who are younger & unlikely to need...

I'm familiar with the use of "administration" when referring to US politics but it's not really a term that's used in the same way here. At least that I've noticed.

I don't know if it accurate to day it was fully funded by the government. Some of the cash apparently came from.the MRC & I don't know if that could be considered as govt money? According to.ME-pedia - https://me-pedia.org/wiki/PACE_trial

Ah but there's a big difference between someone who can get up and get their behind off the sofa, even if it feels very difficult and they're tired and not in the mood, and someone who can only do this once, twice or not at all. I've experienced bouts of illness that have left me too weak to...

Could this be why some of us experience annoying muscle twitching or fasciculation when in PEM?

So why are you diverting much needed support and funding away from services for those with serious mental health problems and funneling them into a one size fits none IAPT machine? [Bolding mine] So why don't you design them properly?

At least if it were a leaflet on paper one could find a use for it. :whistle:

Nope, not excessively grumpy. Valid. Demonstrates the priorities better than we ever could.

Great. Nothing like women gaslighting other women.

George Monbiot's tweet I think that's the wrong question. Here are some alternatives - 1. What is it worth to them to carry on denying the suffering of hundreds of thousands of people in the UK & millions worldwide? 2. In these "woke" times how long will the business model of denial of...

I also take issue that being a member of a support group gives you a more pessimistic view of the condition. I don't believe this is true. It might give you a more realistic idea, certainly. Especially when we consider that it is still being claimed by some that the majority if ME patients...

But this tells us little to nothing. What precisely is a good outcome and a good outcome for who? Here's the thing, from what I've been told it's fairly typical that once a person makes a return to the workplace (& it doesn't necessarily have to be a return to full time either) the clock...

I know fatigue can be one of the symptoms of depression but are there psychological conditions where fatigue is the primary symptom? I agree it's almost impossible to measure fatigue. What the heck woukd the unit of measurement be? I don't get why the obsession with measurements of something...

I tried the supplement stuff...absolutely zero effect on me. A couple of people I know reckon it's brilliant though. Having said that it doesn't have as strong an effect on me as it sounds like it has on you. I accidentally took it in the morning, realized what I'd done & had a cup of normal...

Yet again, this is the same claim being made for over two decades - that membership of support groups is a bad thing. Two decades ago there weren't that many groups that were accessible, the world wide web wasn't even a shadow of what it is today and still people became chronically ill. They...

It may be that none of the four had a say in who was there but the fact they were happy to go ahead in such a panel with every member having the same view reflects badly on them, I believe. There are nearly always different ways of going about things but having taken part in presentations to...