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  1. NelliePledge

    Fluvoxamine vs Placebo and Clinical Deterioration in Outpatients With Symptomatic COVID-19 A Randomized Clinical Trial. Lenze et al. JAMA (2020)

    Is this just a glorified let’s throw an SSRI at it to see if it sticks. Will it be tryclics next. Is there genuinely any science behind this.
  2. NelliePledge

    CDC Awards Medscape Education Three Contracts to Develop Medical Education Programming Addressing Major Public Health Needs

    Obviously depends who’s involved and what the eventual content is but looks like a positive development.
  3. NelliePledge

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Shoddy effort. Hopefully he will read the whole document with Jonathan Edwards and Nina Muirhead’s thorough contributions and actually learn something about ME.
  4. NelliePledge

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Great progress every stage is a fresh battle once the guidelines are in place the next battle will be about how the organisations within the NHS actually deliver care for people with ME based on the guidelines as set out by the Committee. There will be attempts to do a facelift over...
  5. NelliePledge

    United Kingdom: News from Forward-ME Group

    They have a list of local groups as does AFME. But the charities don’t have any involvement in running them or supporting them. Some local groups are charities in their own right, others are very informal basically just a private Facebook group. any links to the charities is pretty much...
  6. NelliePledge

    United Kingdom: News from Forward-ME Group

    I don’t think ME Association has local groups or AFME for that matter.
  7. NelliePledge

    Chronic fatigue syndrome/myalgic encephalomyelitis in children aged 5 to 11 years: A qualitative study, 2020, Bridgen, Crawley et al

    Good grief that stuff is horrible and I’m a hefty adult still had sedation on 1 10mg tablet a day goodness knows what it’s doing to little kids.
  8. NelliePledge

    US: Annual ME/CFS Working Group Meetings from 2020. Stanford/OMF

    :rofl::rofl::rofl::rofl::rofl: That is so cool
  9. NelliePledge

    Does your ME cause sleep inversion?

    I was hopeful my sleeping pattern would be a bit more normal due to the hour change for autumn/winter but no if anything it seems to feel more out of kilter because I’m not getting up any earlier and it goes dark early now. This time last year I was busy moving house so didn’t notice this...
  10. NelliePledge

    Opportunity to tell UK govt about problems for PwME in getting food in the pandemic

    Another survey by Scope about online supermarket shopping https://reporting.bighack.org/answer-questions/supermarket-shopping-online/?utm_source=facebook&utm_medium=paid_social&utm_campaign=BH_fs&utm_content=gifbag&fbclid=IwAR0xHL1O0-gG2B93QndOcptNEp11zdqBGXHy7q3LbQxJNt3y6D2acpBiUvk
  11. NelliePledge

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, CFS, ME/CFS, "medically unexplained symptoms," and related stuff, Fall 2020

    80% 48k now. Hopefully there is an end of the month factor as some receive pay, pensions etc on the next couple of days.
  12. NelliePledge

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    Very Interesting @Barry we definitely need this highlighting in responses - would be good if there could be an equivalent of the PACE reanalysis paper
  13. NelliePledge

    Chronic Fatigue Syndrome the roles of perfectionism and metacognition in co-morbid depression and anxiety, 2020, Wright (D.Clin.Psy.)

    harsh to bracket the whole profession with the worst. We know there are great people like Brian Hughes, L Jason, Joan Crawford in psychology
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