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  1. NelliePledge

    BACME: Position Paper on the management of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS), Oct 2020

    BACME position - guardians of the model retreat to the redoubt and don’t give up the fight for the true GET and the true CBT
  2. NelliePledge

    The Lonely, Isolating, and Alienating Implications of ME/CFS. Boulazreg & Rokach. 2020

    Boulazreg and Rokach Armed forces slang provides me with a term to describe your efforts - bumf
  3. NelliePledge

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Posts from this thread have been moved to new threads: U.K. National Institute of Health Research review Living with COVID-19 USA National Institute of Health post covid management guidelines
  4. NelliePledge

    Aripiprazole - Abilify

    Multiple anecdotes are fine as long as it’s clear that’s what they are. And if the numbers are clear so the value of the evidence can be weighed up.
  5. NelliePledge

    Aripiprazole - Abilify

    Giving it a % makes it seem like properly researched results rather than multiple anecdotes.
  6. NelliePledge

    BMC family practice integrated GP care for patients with persistent physical symptoms, 2020, Chalder et al

    Awesome work @dave30th. Obviously the shambolic standard of Chalder’s latest effort does leave you with an open goal to use the football (soccer) terminology but you scored an absolute top corner belter.
  7. NelliePledge

    Question: Is it the muscle relaxant that causes the most risk respiratory during an operation procedure?

    Hope you can get some rest now @Rosie fingers crossed the results come back ok :hug:
  8. NelliePledge

    Analysis: “Nothing about us without us”—patient partnership in medical conferences, 2016, Chu et al

    Some posts from this thread were moved to another thread 2020 ME/CFS community wins and ideas for how the forum can help in 2021
  9. NelliePledge

    Amitriptyline Downregulates Chronic Inflammatory Response to Biomaterial in Mice, 2020, Scheuermann et al

    I stopped after 18 months. I can absolutely attribute sedation to Amitryptiline.
  10. NelliePledge

    BPS attempts at psychologizing Long Covid

    Thanks for highlighting the response @Andy well done ‘Peter White’ whoever you are excellent reply to Minna Johansson’s rose tinted view.
  11. NelliePledge

    Ethical Psychotherapeutic Management of Patients with Medically Unexplained Symptoms: The Risk of Misdiagnosis and Harm. O'Leary & Geraghty. 2020

    It’s a pity that sentence isn’t clearer - would be simply remedied in my opinion by the addition of seen as or portrayed as quintessential MUS But it is very good that the underlying agenda of MUS is clearly exposed so definitely a positive contribution.
  12. NelliePledge

    Amitriptyline Downregulates Chronic Inflammatory Response to Biomaterial in Mice, 2020, Scheuermann et al

    Yes @adambeyoncelowe sedative hangover of amitryptiline and the fact it stopped being effective for sleep made me give it up. I can’t tolerate caffeine although I did rely on caffeine when I was in my long (7+) undiagnosed period. If I have any caffeine I will be awake all night in a tired but...
  13. NelliePledge

    A prospective study of fatigue trajectories among in-centre haemodialysis patients, 2020, Picariello, Moss-Morris et al

    So even if you have a well documented and medically mainstream very serious disease you are still blamed for feeling seriously ill. :banghead:
  14. NelliePledge

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Quite a few of these people have doctorates in other academic fields rather than are medics
  15. NelliePledge

    Coronavirus - worldwide spread and control

    Link not available in most European countries.
  16. NelliePledge

    BMC family practice integrated GP care for patients with persistent physical symptoms, 2020, Chalder et al

    Hopefully @dave30th will agree and use what you’ve done. Then you can claim an assist as they call it in sport these days when you set up the other player to score a goal
  17. NelliePledge

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Ah ok i didn’t realise you’re not in the UK sorry
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