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If you were picking between long covid and an ME diagnosis I think a lot of people would stick with Covid. despite the issues about perception of it being mild in younger people it has the advantage that 100% of the public have actually heard of Covid. How many of the public have ever heard of...

A post from this thread has been moved to a new thread about the ThinkGP programme. https://www.s4me.info/threads/australia-and-new-zealand-me-cfs-medical-education-thinkgp-online-program.17080/#post-260409

Oh well done @Robert 1973. I mean she’s got 96k followers :thumbup:

Well in reality has to be long covid as she doesn’t appear to have enough understanding of ME to be giving an accurate description of it But yes good point.

I can understand why all these people are talking in terms of recovery and rehabilitation because why would they think any different. None of them who were previously healthy including the GPs have any specialist understanding about what it’s like to have a long term post viral illness...

Wouldn’t work in the U.K. how could you train a rat to drive a car with manual gearbox :whistle:

Im absolutely not suggesting there’s any value at all in people diving in to respond on Twitter there are already some good responses. And I did see a tweet a few days ago where Dr Alwan said she wasn’t reading responses on social media as she had had so many.

I’m posting this here and want to flag up that I have messaged ME Association to request that Charles Shepherd asks Nina Muirhead and Paul Garner to try to work with some of these Long Covid advocates possibly doing a seminar so that they at least have a basic understanding of ME. We...

Some posts from this thread have been moved to a new thread Epilepsy and non-epileptic or dissociative seizures (FND?) https://www.s4me.info/threads/epilepsy-and-non-epileptic-or-dissociative-seizures-fnd.17032/

Still busy in retirement then - White P

U.K. independent SAGE (scientific advisory group) have produced a case study on the situation in Sweden A closer look at Sweden’s response to Covid-19 https://www.independentsage.org/a-closer-look-at-swedens-response-to-covid-19/

https://wellcomeopenresearch.org/articles/5-224 Apologies for not copying the text I’m referring to. Under The subheading The perils of pandemic medicine, in the final paragraph of this section the authors state - i paraphrase - that they argue for not being subsumed into other illness...

Good to have confirmation that the guidelines on chronic primary pain don’t apply to PWME. The wording about GET that CoVId patients are not within the scope of the ME guidance is very weasel words fence sitting and will not influence any NHS staff who are determined that GET should be used or...

Sorry if this is a noddy level question @Dx Revision Watch but I’m confused by multiple requests being submitted. Is this simply because of a lack of coordination within the NHS - different organisations submitting requests without checking if others are already addressing the issue. Or is...

Morrison’s putting limits on loo rolls and disinfectant not due to stock shortages but proactively to prevent bulk panic buying https://www.bbc.co.uk/news/uk-england-leeds-54283153

Presumably assumptions have been made that there’s nothing exceptional about it but are there other illnesses where you can get sore throat and swollen glands from participating in activity?

:hug::hug: Sending best wishes for the op @Rosie

I do most of my time online these days slouched down on sofa with my feet up and I’m ok for quite a long time for browsing and simple messaging. Doing more complicated tasks that have more steps need a lot more concentration like filling in a form or editing text definitely has an egg timer on...

It’s hard to separate out the orthostatic intolerance effect from the cognitive exertion. I didn’t realise about orthostatic intolerance when I was still working. sitting at my desk working on the laptop was pretty exhausting, taking part in teleconference meetings was really draining...

This topic is also discussed on this thread in the members area https://www.s4me.info/threads/why-do-people-believe-in-psychosomatic-explanations-for-illness.15327/