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If I have to queue up or spend a long time socialising sitting up at a table without any breaks it is going to make me feel worse at the time but also I am definitely getting PEM the following day. I don’t know if I’m interpreting this right but it feels like standing in one spot drains my...

I am ok walking round in the pool and floating. If I start trying to swim I get cramp in my calves very quickly so I can only potter about in shallow water. I can walk for longer/further than I can swim. It was a heated pool but not actually warm. As I’m having work done on my house and...

when a member of my extended family asked me at a Christmas get together a couple of years ago what is ME and I said it’s like having flu a lot of the time it was understood and I Think registered as pretty serious. In my experience flu like symptoms is reasonably well understood by the...

Yes - really important point

I can’t use NSAIDs because of the hypertension medication I take

I count that as the first stage in PEM. I get wired then energy crashes and symptoms ramp up.

Of course we shouldn’t be surprised he is trying to be seen to be saying the right thing and of course that makes all us PWME who say he’s a hypocrite just look like the terrible people picking on him he’s always had to deal with - poor sausage

And apparently hasn’t explored the history of post viral illness

Utter hypocrisy from his ‘eminence’

Ah ok i was scratching my head til I spotted the footnote.

When I’m in a positive frame of mind about it this is what I hope, that trying to use their psychosomatic bs on this new group simply won’t wash. when less positive the concern is there will be a blinkered attitude by all concerned Patients medics health professionals that Covid is somehow...

Pyramid selling

Nowadays in retirement i try to plan things so I have enough time to think things through before any big decisions. Treat it like a work task and make notes. Also at times have to say no I need time to think I’m not deciding now I will come back to it tomorrow. As moderate ME at my worst end...

I wouldn’t know - is there information to compare this with other viruses

You’re doing a great job :thumbup:

Oh wow that’s great news

I don’t think I’ve ever picked up on NAC being something that helps some with tired but wired insomnia. Very interesting and one I will look into.

There are many people in the public who struggle with written material for a variety of reasons. See this blog for more information from a content specialist https://contentdesign.london/reading/dumbing-down/

I think it is positive that they are able to offer a limited hours role that’s still paid. As some who only 2 years ago had to apply for ill health retirement because I could not reliably maintain 15 hours a week working in a team this sort of role where you can work at your own pace for a few...

Yep all those slightly overripe pieces of fruit have been turned into a wonderful ‘fresh’ salad.