Search results

  1. S

    Dutch Health Council on ME/CFS tomorrow on national news

    https://www.steungroep.nl/nieuws/423-30-maart-2018-uwv-trekt-consequenties-uit-advies-gezondheidsraad-over-me The UWV(Our version of DWP I reckon) sent out a memo to their doctors that refusing to follow a CBT/GET course can no longer be used to deny benefits. Article is in dutch and I ain't...
  2. S

    Science for ME PACE Briefing document

    I'd welcome the bastards with open arms. Self-preservation and all.
  3. S

    Dutch Health Council on ME/CFS tomorrow on national news

    She is presented with enough evidence that she doesn't have the right to claim being naive.
  4. S

    Rethinking the treatment of CFS — a reanalysis and evaluation of findings from a recent major trial of GET and CBT (2018) Wilshire et al.

    Yeh, a bunch of us even tried it with the hopes of getting better. It's the finding out we'd been duped and made sicker while also cutting us off from other help that got our collective goat.
  5. S

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    Damn, I'd be looking like a ghoul if they'd taken that much from me.
  6. S

    What is Action for ME's current (March 2018) position on the PACE trial?

    Kicked up again. @Action for M.E. , we're all eagerly awaiting an answer.
  7. S

    Action for ME has joined S4ME

    I don't see the heat being turned down anytime soon. Anyone that reads anything about afme will know how poor they have been for us. If anything them joining this forum and threads like these popping up has turned the heat on again. Aslong as there are intelligent people here to challenge them...
  8. S

    BBC: Chronic fatigue trial results 'not robust', new study says

    Clever adversaries would stear well clear of defending the indefensible.
  9. S

    CBT- Jen Brea Twitter

    It's pointless, I agree. I just don't see it as harmful or anything, what is Sharpe gonna do to us that he hasn't already done?
  10. S

    CBT- Jen Brea Twitter

    Whatever he has up his sleeve he's gonna do regardless of anything we say to him. The man isn't bothered with patients or facts.
  11. S

    CBT- Jen Brea Twitter

    Can't be arsed with what Sharpe thinks about us to be honest. He's not the one we've got to convince.
  12. S

    Action for ME has joined S4ME

    You could explain those rules any way you want. Insulting might just be a truth that you don't want to hear, as seems to be the case in many instances.
  13. S

    O'Dowd-Crawley early intervention study

    It shows what they were all about and what they continue to be all about. Small hint, they're not about helping patients.
  14. S

    Occupational Aspects of the Management of Chronic Fatigue Syndrome: a National Guideline, 2006

    You can't keep quiet anymore out of fear of feeding some stereotype those bastards created of us. If we keep quiet nothing will change.
  15. S

    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    Good reminder of how terrible the man has been for us. He has got to go if they really want to earn back the patients trust.
  16. S

    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    Can't blame people for being sceptical of an organisation that for most of it's existence did nothing to help pwme. Instead, if anything, gave a platform to people who have been seriously harmful to our cause. Crawley going, Ponting taking her place and the new agenda are all well and good. But...
  17. S

    Gary Burgess talking ME/CFS BBC Radio 5 live Wed 1pm

    That's only part of the story though, most important is gonna be to find ways to alleviate or cure our disease when it comes to hope.
  18. S

    Analysis of minister’s response in Westminster Hall PACE debate

    That Chalder statement and the fact that Wessely was both a stakeholder/supporter(someone help me, what was it?) or whatever to PACE and the one who set up the ME section of Cochrane should put to bed any claims of unbiased review from Cochrane. We should have all our advocates keep that info at...
Back
Top Bottom