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  1. Arnie Pye

    Merryn Crofts - media and inquest

    Two more links : https://www.mirror.co.uk/news/uk-news/young-woman-bed-bound-three-12559425 Article continues at link above... https://www.manchestereveningnews.co.uk/news/greater-manchester-news/young-woman-who-spent-years-14678759 Article continues at link above ...
  2. Arnie Pye

    Merryn Crofts - media and inquest

    You can see the report from the link Andy posted. I can read it even though I don't have a Facebook account. A box pops up asking you to sign in or join, but there is an option to click on "Not Now" on that box which makes it go away (although it has a tendency to pop up quite often).
  3. Arnie Pye

    Chance discovery links inflammatory bowel disease with common bacterial gut toxin

    I wonder how many people with IBD are fobbed off with a diagnosis of IBS for years. I suspect a fairly large proportion of the people frequenting this forum have been diagnosed with IBS at one time or another, particularly if they are female with gynaecological problems. It's a diagnosis that...
  4. Arnie Pye

    #MillionsMissing today, 12 May - post news, tweets, etc. here

    Did everyone go home at 5pm? Because the BBC finally posted an article on #MillionsMissing (Correction : ME or CFS ) at around that time... http://www.bbc.co.uk/news/newsbeat-44094429 As articles go, it's totally pathetic. And it doesn't actually mention #MillionsMissing.
  5. Arnie Pye

    #MillionsMissing today, 12 May - post news, tweets, etc. here

    Anyone else noticed that reporting on the #MillionsMissing day is noticeable by its absence on the BBC news pages today? http://www.bbc.co.uk/news/health
  6. Arnie Pye

    #MillionsMissing today, 12 May - post news, tweets, etc. here

    Published yesterday, so probably in the wrong place :
  7. Arnie Pye

    How many hours of sleep a night do you need? - Now with Poll

    Low thyroid hormone levels, particularly low T3, can prevent dreaming, or will dramatically increase the chance that any dreams are actually nightmares. (Based on my own experience, and anecdotal reports from others with hypothyroidism.)
  8. Arnie Pye

    Anti-convulsants - Pregabalin and Gabapentin

    I took Pregabalin for a few (perhaps three?) months a few years ago, for pain that was declared to be neuropathic. I'm not even slightly convinced that the pain is neuropathic though. I don't remember the dose I took, but I couldn't stay on it for very long because it made me sleep for about 16...
  9. Arnie Pye

    How many hours of sleep a night do you need? - Now with Poll

    Snap! That describes me! My best time of day, by far, is usually evening. I know that I've had very high cortisol first thing in the morning in the past. I haven't tested it in recent years though. I'm pretty sure that people with very low cortisol first thing in the morning feel at their worst...
  10. Arnie Pye

    Using Online Pharmacies

    Anyone using German pharmacies from outside Germany itself are discovering that they no longer deal with anyone but Germans when it comes to prescription-only meds. https://www.iracm.com/en/2017/01/germany-parliament-advises-online-prescription-medicines-ban/ The "advised" ban now seems to be...
  11. Arnie Pye

    BBC: Chronic fatigue syndrome treatment 'should be withdrawn'

    I notice that the "leading ME researchers and clinicians" are nameless. This is the first time I've seen this from the BBC in this context (as far as I can remember). It suggests to me that the BBC might be falling out of love with them.
  12. Arnie Pye

    One side effect of being young, female and sick: People won’t believe you

    Yes, that is why I thought it was worth posting. But it still shocks me to the core.
  13. Arnie Pye

    One side effect of being young, female and sick: People won’t believe you

    Doh! I missed that completely! Thanks for the answer! :banghead: :facepalm: :rofl:
  14. Arnie Pye

    One side effect of being young, female and sick: People won’t believe you

    My reason for posting about this article is not because the article is fantastically good (it isn't), but because the comments in reply to it are astonishing. (Could someone tell me what an MW is, please? Somehow I don't think it is a megawatt!) Edit : The article isn't awful either, so do read...
  15. Arnie Pye

    The New York Times: When Doctors Downplay Women’s Health Concerns

    Thanks for the link, @Indigophoton , I found it interesting. The related coverage articles at the bottom of the article are also worth reading if anyone is particularly interested in this subject.
  16. Arnie Pye

    Electroconvulsive Therapy

    My doubts about the treatment of mental health problems are because I don't think doctors do a thorough job in checking for physical health issues that could be causing the mental health problems, before they label the patient, dose them up to the eyeballs on something to keep them quiet, and...
  17. Arnie Pye

    N-acetyl cysteine (NAC)

    I usually take one just before I go to bed. If my lungs are particularly bunged up I might add a second dose in the early afternoon, but I never do that for more than a few days because I find it dries my lungs out too much.
  18. Arnie Pye

    Electroconvulsive Therapy

    If the electric current applied to a patient's head has the effect of making the feet twitch (as mentioned in the original article), then the current must be going through nerves in the pelvis and then into the legs to have that effect. It seems unlikely to me that such a current would...
  19. Arnie Pye

    Electroconvulsive Therapy

    From the link in the original post in the thread : My emphasis. What kind of barbarian gives ECT to a fetus? The idea makes me want to vomit!
  20. Arnie Pye

    Electroconvulsive Therapy

    I've had minor electric shocks before (from fences around fields to keep farm animals in). I remember how unpleasant it was. Nothing will convince me that passing an electric current through the brain is a) good for the brain) and b) doesn't cause long term damage. It simply makes no sense to me...
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