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People want to feel like they're in control, and pushing themselves gives them a feeling of accomplishment. I pushed myself in the earlier years of ME, but it didn't turn out so well.

It's a very small percentage, and even though children may experience frequent attacks (possibly more than typically seen in adults), studies have shown that children also seem to have very good recovery that is often more rapid than adults

Wow, I talked about ME for 7 years straight to anyone who would listen, and then realized no one was interested so I stopped.

I felt pretty much recovered after 9 months of PVFS and returned to work. My equilibrium and sleep was the first sign that something was wrong after only 10 days. I wasn't fatigued or sick, it felt like a switch had turned off.

And there's also remitting-relapsing episodes that occurs with PVFS and ME. I rested very well for the first 7 years and reached a level of 80-90% improvement. I don't believe resting for another 5 years would have made any difference in my situation. When we start exerting ourselves...

My experience with having ME for 30 years and interacting with pwME, is that some of us develop comorbidities over time that will determine the progression of the illness, spontaneous recovery isn't dependent on resting early in my experience, but does prevent PEM from becoming worse. Some...

I forgot to mention that the mag shots were injected in my butt :laugh: Either way, I always thought it would hit bone .

I used 38mm needles when I injected IM with magnesium sulfate and I'm slim. I think they should use this size for all IM injections.

I wasn't surprised to learn recently that POTS is now being referred to as 'deconditioning' too :emoji_rolling_eyes: The Dysautonomia folks posted a recent tweet highlighting an Olympic swimmer dx with POTS as not having 'deconditioning'.

My sister gets dizziness from time to time from Hashimoto and has to take a day off work. She gets fatigue but can still work, but high impact aerobic exercise is hard for her. She experiences what she describes as 'brain fog', which is not at all close to what I experience with...

His behaviour is insulting and irresponsible, and does not reflect the experiences of pwME by making comments such as 'disarming'' ME/CFS. His dismissiveness towards pwME when they tried to explain their experiences says a lot about him.

This article was going well until . . . PG is making his 'mark', as you say n=1 everywhere. It's truly baffling. https://www.discovermagazine.com/health/what-we-know-and-dont-know-about-long-covid What bothers me more is that CFS (or ME) is linked to his name.

https://intracellresearchgroup.com/chlamydia-pneumoniae/ I watched a program 20 years ago where a Canadian doctor said they found chlamydia pneumoniae in Alzheimer's brains and that "it should not be there'. He also mentioned that Alzheimer's should be treated the same as heart disease.

@Tia I haven't had any jabs yet, but here in Canada (NACI) are recommending that people who received first dose AZ get the an mRNA (Pfizer or Moderna) for their second dose.

@Wyva On a positive note (?), sending you to different specialist can help r/o other illnesses? I was sent to many specialists and had tests and blood work done before being diagnoses.

My blood lactate levels were 'normal' the next day (and second day) when I was in PEM after exercise (running).

I have seen over a dozen doctors and specialists in my 30 years with ME, not one has ever advised or suggested I see a physio therapist. I was told to rest.

It gives a whole new meaning to getting 'the shot'.

They don't believe Covid exists and that they have the 'flu'. Several months ago I watched an interview with an ER doctor in the US who experienced this disbelief with his patients, they could no longer breathe and dying. He said that he has family members that no longer talk to him...

The justification for the lottery incentives up here is that it would save millions of dollars in hospital stays if more people get vaccinated. Emergency doctors are saying that the only sick/dying patients they're seeing now are unvaccinated patients, and many still don't believe they're...