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I still get this on and off for 30 years, sometimes accompanied with burning shin splints. It has nothing to do with pacing in my case. Allergy season is super high these past few weeks so this is having an effect on my overall immune response. Was out for a walk these last 2 evenings and...

Though Marrero and other doctors investigating have learned to see the shape of the mystery disease, so far they’re still unable to figure out what it actually is, where it comes from, or how to treat it. And it seems like the disease is picking up speed...

It was prescribed to me by a virologist who did a small study on the medication for pwME.

@Wonko There are 45,000 vaccines set to expire May 31. There was a pause because of blood clots. They have not distributed them to primary care doctors who have been screaming that they want them for months. Some vaccines were only distributed to pharmacies this past Friday. Health...

Health Canada is extending the expiration date of AZ vaccine from May 31 to July 1 :emoji_thinking:

https://journals.sagepub.com/doi/full/10.1177/20552173211004634

So it appears that Tysabri has been rejected by the FDA? edit: It appears that the sub q not the intravenous administration has been rejected.

https://sciencebasedmedicine.org/a-new-study-reveals-that-naturopaths-order-a-lot-of-unnecessary-pediatric-labs/

https://pubmed.ncbi.nlm.nih.gov/33978163/

Yep. My definition of a relapse is when you experience an 'event' and never go back to your baseline. You might develop new symptoms. My 'event' was from taking immune modulators in 2001. At the time I was feeling 90% improvement and become very ill one month after taking the...

Good point. I have experienced periods of full stop loss of stamina since meno that is distinctively different from ME.

@hinterland Sometimes I get palpitations and heart rate increases from viral infections. I wonder if your palpitations are the result of an immune response from the vaccine? I would mention it to your doctor.

Oh no :( I'm rethinking getting vaccinated now.

Wearing rubber bands on my wrist to remind that I have something in the oven only reminds me that I need a haircut. Still burning my walnuts. Go figure

About the Author Gabrielle Jackson is an associate news editor at Guardian Australia, and was previously opinion editor there. Before that, she was a senior journalist at The Hoopla. Gabrielle has lived and worked in the USA, UK and Australia as a journalist and copywriter. She currently lives...

I just wanted to post this here. The comments are interesting.

The opportunists are out.

Some don't receive much compassion from their own families, and are raised and expected to tough it out.

Nervous system infections are treated by neurologists.

I have had very minor sleep issues in the 30 yrs of ME.