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  1. Mij

    Gastric Mucosal Immune Profiling and Dysregulation in Idiopathic Gastroparesis, 2021, Gottfried-Blackmore et al

    @DokaGirl The good news regarding Long-Covid is that it is bringing more attention to post-infectious POTS and dysautonomia related illnesses.
  2. Mij

    "Exercise in a pill" - potential for ME/CFS?

    I was reading about Sestrin a while back. Is this the same idea?
  3. Mij

    Gastric Mucosal Immune Profiling and Dysregulation in Idiopathic Gastroparesis, 2021, Gottfried-Blackmore et al

    @DokaGirl My best friend passed away from ME related comorbidities after 18 years of illness from a viral infection. He had autonomic failure and severe gastroparesis. He was an athletic healthy 35 yr old when he became ill.
  4. Mij

    Iron deficiency and dysregulation

    An Internist I saw in 1991 told me that my 'iron' was fine. I don't know if he tested my ferritin, and didn't know what ferritin was at time so didn't ask. Then in 1996 when I was tested by a new GP, my ferritin was at 4. She asked if I was vegetarian, and when I told her I wasn't, she...
  5. Mij

    Gastric Mucosal Immune Profiling and Dysregulation in Idiopathic Gastroparesis, 2021, Gottfried-Blackmore et al

    Absolutely, gastroparesis can be a manifestation of GI autonomic dysfunction. I know many who have this.
  6. Mij

    Gastric Mucosal Immune Profiling and Dysregulation in Idiopathic Gastroparesis, 2021, Gottfried-Blackmore et al

    I have seen the term "functional" used in gastroenterology many times. My guess is that 'functional' (non-organic) is used in this case because it lacks a proper biomarker?
  7. Mij

    Gastric Mucosal Immune Profiling and Dysregulation in Idiopathic Gastroparesis, 2021, Gottfried-Blackmore et al

    Abstract INTRODUCTION: It is unclear how immune perturbations may influence the pathogenesis of idiopathic gastroparesis, a prevalent functional disorder of the stomach which lacks animal models. Several studies have noted altered immune characteristics in the deep gastric muscle layer...
  8. Mij

    Covid-19 vaccines and vaccinations

    Delayed 2nd Pfizer/BioNTech shot boosts antibodies in elderly; COVID-19 obesity risk higher for men (msn.com)
  9. Mij

    Canada - Unknown brain disease in New Brunswick

    I experience tremors with shakiness, especially with adrenaline surges.
  10. Mij

    Covid-19 vaccination experiences

    Did you have a viral infection at the time you were vaccinated? I was vaccinated with several vaccines during a viral infection when I got ME. I'm not vaccinated yet, but have no problem getting the doses once my current viral infection is gone.
  11. Mij

    Covid-19 vaccines and vaccinations

    https://www.healthline.com/health-news/can-we-mix-and-match-covid-19-vaccines-experts-say-not-yet#Not-the-first-time-vaccine-mixing-is-attempt I've read that they've also had better outcomes mixing vaccines for the Ebola virus.
  12. Mij

    Canada - Unknown brain disease in New Brunswick

    It is the same cluster in the same province.
  13. Mij

    Covid-19 vaccination experiences

    @Binkie4 It appears that the COV study is referring to side-effects of the vaccine. This doctor was speaking specifically about improved efficacy of mixing doses because Canada has put another pause on AZ.
  14. Mij

    Covid-19 vaccination experiences

    On state news this morning (CBC), an infectious disease doctor was saying that mixing vaccines could be more beneficial than administering the same vaccine. He mentioned another type of vaccine for a different illness that did just that. I didn't hear too well on what that illness was.
  15. Mij

    MEAction 2021 MECFS researchers video with R Davis,Prusty

    He's offering what he has, but making it appear that it’s more than what it is. I would rather hear that they're making progress in treating symptoms than getting people's hopes up and continue to say "cure". I feel it diminishes the seriousness of this illness.
  16. Mij

    How characteristic are elevated monocytes for pwME?

    Mine are generally on the low/normal side. They don't represent how I feel.
  17. Mij

    Iron deficiency and dysregulation

    If your GP goes strictly by reference range then you might be in trouble if you're not receiving your lab results. A ferritin reference range of 12 to 150 ng/mL is not a good indicator. Anything below 20 is the first sign that I don't feel right. I feel best at 50+. Maybe it's just me...
  18. Mij

    Rapid fatigability or a lower amount of available energy - the same thing or different?

    How is it that some of us have more 'available energy' on some days and not so much on others? Why is it that sometimes when I start out on my walks my legs are not wanting to hold me up and wobbly? It's like I have MS legs. Then as I get going, my gait becomes smoother and I'm able to...
  19. Mij

    Iron deficiency and dysregulation

    @Arnie Pye Apparently, copper deficiency is rare. It goes to show that our minerals, amino acids and fatty acids are not being absorbed properly. I had the profile of someone who was malnourished despite eating a very healthy diet and drinking fresh veggie juices every day. I took...
  20. Mij

    Iron deficiency and dysregulation

    The odd thing is that my periods were always light too. Since menopause, my ferritin is now steady at 95. My GP kind of laughed when I was surprised to see my ferritin so high, not understanding that my periods were always light. I should also add that my copper (ceruloplasmin) which...
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