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@1:55 Esther Crawley says "...there's good evidence for CBT in paediatric CFS". What evidence is she referring to? Also why are the comments disabled, are they afraid of descenting opinions? You can discuss this video on this thread

UK CMRC Conference 2016 - Video of Esther Crawley's lecture @1:55 Esther Crawley says "...there's good evidence for CBT in paediatric CFS". What evidence is she referring to? Also why are the comments disabled, are they afraid of descenting opinions?

I have Reynaud's which may contribute to difficulty giving blood.

This is a general thread for the discussion of videos related to ME. Both good and bad videos are to be included. I'll start with a positive: Notice at 2m47s - He says ME crashes can be permanent which is very relevant to me since I've become 100% bedbound due to doctors, friends, family not...

What makes you say that?

Watched it. The view count Llewellyn King gets is pitiful, almost negligible by YouTube standards. Makes me think there are far less proper ME sufferers than I thought. What could they do to reach a wider audience?

I tried VegEPA along with £200 worth of Myhill's vitamins and supplements for 3 months and it didn't make one bit of difference to my symptoms.

When I was in a general hospital in 2013, the physiotherapist tested my hand grip strength. When I asked why won't he test me again in a few days or a week to prove deterioration and that I objectively have something wrong with me, he said I would be accused of not trying hard enough.

On page 4: Does anyone know who was the Vice President of the ME Association back then?

https://www.margaretwilliams.me/2003/mental-health-movement-persecution-of-patients-select-ctte.pdf - The end of this document has a wealth of useful quotes including about refusing testing. On page 57 Simon Wessely synonymizes CFS with MUS then conflates MUS with somatising, all without...

I've spent hundreds & hundreds of £s on vitamins & supplements and not seen any benefit in ME symptoms what so ever.

It's hard to believe how bad the greatly respected Cochrane Review is. They conflate neurasthenia (which is viewed as psychological) with ME. They also define the illness as merely unexplained fatigue rather than an intolerance of exercise & exertion (which is what true ME is). In essence they...

Merged thread I just watched: https://www.bbc.co.uk/iplayer/episode/b0bmblb8/horizon-2018-8-the-placebo-experiment-can-my-brain-cure-my-body# on BBC iPlayer (Available to UK viewers only). What do you guys think, is the placebo effect real or is it just response bias combined with natural...