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But I like the idea that a charter could help this and spell out some of the things that have occured and do tend to occur that need to be avoided. I'm afraid that for various reasons relying just on that as a tick-box without guidance of what is expected will be picked up is insufficient. ie...

I just don't know much/enough layperson's stuff about this, so would be interested in anything you can point me to, whether it is articles or your own summary @poetinsf I think it is interesting to learn lessons from all sides of history and of course I'm intrigued to know more generally :)

I like this. I think it is important. And underlining how vulnerable a population we are for various reasons - because I think we've been targeted by this activity because of our inability of many to speak, nevermind speak in a convincing (because we come across as sick) and unending against...

ffs - sorry but... agree with @rvallee and last line of @JohnTheJack

This paper has both Heightman and Livingstone as authors talking about that UCL service: Post-COVID-19 assessment in a specialist clinical service: a 12-month, single-centre, prospective study in 1325 individuals | BMJ Open Respiratory Research and here : Speaker-Bios-FINAL.pdf (potsuk.org) as...

Dr Anibran Gupta a quick google this seems to be the service he has been with: Pioneering post COVID service helps southwest Londoner get life back on track :: Central London Community Healthcare NHS Trust (clch.nhs.uk)

Dr Harsha Master (GP) video on the long covid service she is involved with: Long covid service needs and development: Community - Dr Harsha Master (youtube.com) I haven't watched it in full yet.

Jayne Woodcock (psychologist) seems to be in the following thread: United Kingdom: News from BACME - British Association of Clinicians in ME/CFS | Page 3 | Science for ME (s4me.info) offering compassion-focused therapy at that event

Just looking these up. A few seem to be based in Leeds. I assume Sivan is the same person involved in this: Latest news from Leeds Teaching Hospitals NHS Trust (leedsth.nhs.uk) ?

There is a big and important underlying question too: Would any of those who had been harmed and were at the brunt end of all of this feel safe thinking 'yes I'll just send back a questionnaire to Crawley and those who treated me saying how I didn't enjoy it and it harmed me' ? In essence this...

and you have people who are really interested in their area being landed with 'the other bit' and all the ring-fenced funding (if that ever happened) doesn't tend to fix that lack of interest (because different specialisms look and use different methods to look into things). If you wanted to do...

why the note about adding in those with ME/CFS then? seems like mission-creep if they wanted to claim that. I don't know what others' initial musings are on whether it is safer to have a Chinese wall between those who deal with the respiratory-side and develop some new expertise in the ME/CFS...

"we'll 'deal with them' for you" is pretty different to 'how can we develop expertise to better the lives of those unlucky enough to be hit by this', certainly in audience and therefore tone based on who said target audience is intended as

The order of those priorities, if read with suitable cynism, says it all really as far as priorities and who they serve go. Reads too much like the manifesto-type papers we see where deciding what you want to 'get', then 'offer' from a supply-led perspective, then 'research' being about...

It’s brilliant you’ve done a great job of what seemed an impossible task. agree that there is something different about people choosing to click through and ‘get more’ themselves once the gist has been emphasised that makes it better accepted too

hmmm agreed. fingers crossed that one is heard by those to whom it was sent. I saw 'Recognition' and thought 'of whom' (or what as an entity) when they put it as their primary 'emphasis' for the new professional society?

No I agree with what you are suggesting. Whilst typing with my index finger and swift button pressing of the space bar is straighforward, it isn't at all with my little finger which clearly isn't designed/intended for those types of tasks. But also I think that different keyboard set ups would...

There seems to be downloads here at the Tread lab: Tools — TReAD Lab But as there is a form for access for one, and then a download for one which seems to be staggered including an MRI type thing I'm not fully sure what is involved and what you'd need to run it computer-wise etc.

Agreed. And I think the appropriate term is it being an individual's manifesto. With a few points to some whizz bangs to say 'look laypersons some science because it turned blue' being used to cover for what seems to be a term that doesn't originate from either laboratory or solid validation.

I find the test with these things - and the authors who are becoming the stooges inadvertently for others might want to do this check on themselves - is to just substitute any other minority and related tropes into what you've just said and see if you think your job/partner/friends would ever...