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  1. Andy

    The impact of rumination on fibromyalgia pain after physical activity: an experimental study 2023 Fonseca das Neves et al

    Abstract Some fibromyalgia (FM) patients engage in rumination (i.e. a chain of repetitive, passive and relatively uncontrollable thoughts focused on negative content) to cope with the pain and discomfort of daily activities. The partial model of rumination in chronic pain suggests that...
  2. Andy

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Fall 2023

    $46,510, 71% of target 8 days left https://crowdfund.berkeley.edu/project/40018
  3. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    9,561 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review
  4. Andy

    Open UK: Investigating the presence of Micro Clots and other blood factors in people with ME/CFS, Sheffield, Caroline Dalton, Ryback, Hillier

    Link to Simon M's blog about the research: Remarkable researchers hunting for ‘something in the blood’ of people with ME "In this research we are looking at microclots in the plasma of ME/CFS patients and healthy controls and we will conduct experiments to look at the effect of patient serum...
  5. Andy

    Job Vacancy: Statistical Geneticist, Edinburgh - working on ME/CFS and Long Covid

    "The Opportunity: The post holder will be responsible for undertaking statistical analysis of genetic data, using and developing case-control genome-wide association study (GWAS) designs. The purpose of this is to delineate the contribution of genetic variants to Myalgic...
  6. Andy

    Opinion Improving the nosology of Long COVID: it is not so simple 2023 Calabrese and Mease

    Discussing content from Calabrese previously: Biologic and Nonbiologic Interventions for Fatigue in Rheumatoid Arthritis (2019). Calabrese. Long COVID: defining the role of rheumatology in care and research (2022) Calabrese et Calabrese Rheumatology and Long COVID: lessons from the study of...
  7. Andy

    Opinion Improving the nosology of Long COVID: it is not so simple 2023 Calabrese and Mease

    Appears to be a response to Long COVID: a new word for naming fibromyalgia?, 2023, Xavier Mariette
  8. Andy

    Opinion Improving the nosology of Long COVID: it is not so simple 2023 Calabrese and Mease

    Abstract Long COVID is a diagnostic label currently given to those suffering from a poorly understood state of incomplete recovery or who have development of a myriad of medically unexplained symptoms occurring in the wake of infection with SARS CoV-2 that is both poorly understood and...
  9. Andy

    Clinical outcomes, medical costs, and medication usage patterns of different somatic symptom disorders and functional somatic syndromes: 2023 Wu et al

    Full title: Clinical outcomes, medical costs, and medication usage patterns of different somatic symptom disorders and functional somatic syndromes: a population-based study in Taiwan Background Somatic symptom disorders (SSD) and functional somatic syndromes (FSS) are often regarded as similar...
  10. Andy

    Long Covid in the media and social media 2023

    Trial By Error: Column in Time Magazine Calls for Halt to Biomedical Long Covid Research "Time magazine recently published an opinion piece that calls for an end to biomedical research for long Covid—based, it seems, on what the authors view as the ME/CFS precedent. The title: “How to End the...
  11. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    9,552 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review
  12. Andy

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Fall 2023

    $43,113, 66% of target 10 days left https://crowdfund.berkeley.edu/project/40018
  13. Andy

    Opinions on payments to participants in research

    Perhaps in America, I'm not so sure elsewhere.
  14. Andy

    Open The Living With a Long-Term Condition Study (LTC), King's College London

    Well, in effect they are doing that, but clearly the magic happens when a 'very clever person clearly worth their funding' assigns numbers to particular answers, because they then can declare that they can 'accurately' measure the level of distress to each person.
  15. Andy

    Rapamycin Pilot Treatment Trial for ME/CFS

    "We need to raise $350,000 for our Rapamycin pilot trial! We're not funding drug costs, but we're testing biomarkers 4 times per enrollee. And autophagy markers make this study unique! On #GivingTuesday put your donation on #ME treatment trials!"
  16. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    All your post says is Oxford - Karl is in Oxford.
  17. Andy

    International: Science for ME social media posts

    Published papers thread for w/c 13th November. Facebook: https://www.facebook.com/sci4me/posts/pfbid02zXBuAt3UNjTXcEUpeF9KU2SP4yoD1DQgJwMqvRyb4351STASNKkFu8D2URrbwXs1l Mastodon: https://med-mastodon.com/@s4me/111442382593068196
  18. Andy

    Opinions on payments to participants in research

    Here I am talking about payments to people who, for example, fill in a questionnaire, donate a sample or in any other way participate in a research study. The poll is there if you want to provide a quick for, against or "it depends" answer - if you do answer "it depends" in particular I'd be...
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