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Yes that is exactly how it is for me. Attempting to continue to exert at this point (trying to stand/crawl etc) causes vomitting, but if i can lie still on my left side for an hour or so in dark, warm, silence, I can recover enough to start moving about a little bit & talking again (if very slow...

Exactly, exactly exactly. For example, No disrespect to the MEA AT ALL, but i always hated the way they describe one of our symptoms as 'exercise induced muscle fatigue', i mean surely everyone has that? everyone's muscles feel tired after exercise - it just depends how much exercise - & that...

@Esther12 @Londinium @Trish you have articulated my own thoughts & feelings perfectly Unfortunately I fear Dr Myhill & her colleagues here will be held up as "see how these idiot quacks fire-up & encourage the anti-science brigade? this is why the patients are crazy, these are the doctors that...

What an abhorrent, repugnant & reprehensible display of the arrogant cruelty that we know so well.

indeed :)

Yeah it will be :eek::(:(:( They have previously not pressured people who are in the Support Group of Employment support allowance - these are those the gov't deem unable to do any kind of work related activity due to illness/disability. But the plans referred to in the article are ones to...

So good that this is being done. Many thanks to all concerned

Awful. But replacing psychoanalysis with ABA can in many ways be just as bad. In this article ABA sounds lovely, but one of it's aims can be to stop autistic children 'stimming' (- coping mechanism for what they find overwhelming), & train them out of their differences so they can basically 'fit...

Oh i probably wrong then, i suspicious of everyone since Crawley was disingenuous about the MEA on the radio recently trying to make out they didnt want research into paediatric ME when she knows perfectly well it was SMILE they didnt want.... it's all just so underhand & sly, & it feels like CS...

Just to say that Colin Barton definitely posted this on the MEA's facebook page on 28th December. I deliberately ignored it because, having posted EC's TEDx talk there on 24th Dec (-Merry Christmas!) i felt Barton was likely being provocative & trying to get a rise out of people, or get...

I cant find it. I'm sure i saw it but it was old & some yrs ago that i saw it. Perhaps i've gone bonkers & it was by someone else, but i really think it was either White, Wessely or Sharpe, because i remember thinking how they were not advertising that particular study as it didnt say what they...

This is a good idea Sasha. Wasn't there a paper by White that actually contradicted the 'deconditioning' theory? I'll try to find it.

Oh! I found it, the open letter, it's the one to Psychological Medicine about the recovery paper from PACE :) for anyone else who's interested it's here http://www.virology.ws/2017/03/23/an-open-letter-to-psychological-medicine-again/ "That the editors of Psychological Medicine do not grasp...

Thanks so much Graham. That doesn't have all 102 signatories listed that eventually ended up on that letters, or maybe it was a different letter, it's all a blur to me now, but & i especially wanted her to see all those signatories because there is at least 1 psychiatrist working in a UK NHS...

Hi all, I wonder if someone can help me out pls.... 8yrs after ME onset I got PTSD. I am working with a new community psych nurse to give me support for it. She has minimal knowledge about ME & has expressed an interest in finding out a bit about it - she was asking me what treatment was...

@MsUnderstood I do like your car analogy. Personally i find the £ analogy the best too. Because most people i know have been broke at some point & understand the notion of having to watch every penny the way i watch all my exertion - so when i explain that i have £10 to spend per wk Whereas...