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If anybody, FND patient or otherwise, wants to understand why I am so concerned about FND in relation to ME/CFS, here is an excellent example. In response to the NIH's Walter J. Koroshetz posting on Twitter about the ME/CFS Research Roadmap Working Group, Alan Carson, one of the leading...

Not specifically about ME Awareness Day but as it was posted today... Anil van der Zee on Twitter "Since I've been living isolated from the world since 2013, and from 2015, one visitor per year has not been uncommon. I've decided to film my current life with M.E. Not that my days are that...

Copied post Not specifically about ME Awareness Day but as it was posted today... Anil van der Zee on Twitter "Since I've been living isolated from the world since 2013, and from 2015, one visitor per year has not been uncommon. I've decided to film my current life with M.E. Not that my days...

"One of the UK’s leading psychiatrists is calling for an overhaul of the diagnosis and treatment of psychotic disorders following evidence that a small but significant fraction of cases could be triggered by an autoimmune response. Speaking before the relaunch of a groundbreaking trial in which...

"Disturbance of attention is thought to be responsible for the symptoms,4 as with other functional neurological disorders,5 although the underlying pathophysiological mechanisms remain unknown." Reference 4 is to A unifying theory for cognitive abnormalities in functional neurological...

Introduction Functional cognitive disorder (FCD) is seen increasingly in clinics commissioned to assess cognitive disorders. Patients report frequent cognitive, especially memory, failures. The diagnosis can be made clinically, and unnecessary investigations avoided. While there is some...

Background Reliably applied criteria to differentiate functional from primary tics are lacking. In the absence of biological markers, the development of new diagnostic criteria to assist clinicians is predicated on expert judgement and consensus. This study examines the level of diagnostic...

[Researchers torture mice, fed them a traditional Chinese medicine, claim it helps] Highlights Astragalus polysaccharide (APS) improve the learning and memory abilities and reduce despair in mcie with chronic fatigue syndrome (CFS). APS ameliorates intestinal barrier damage and inflammation...

World ME Alliance on Twitter "We are thrilled to be interviewing @KaloyanKKamenov at the @WHO for #WorldMEDay 2023. Get ready to watch as it goes live at 15:00 BST on Friday May 12th. Thank you to Dr Kamenov for committing to ongoing engagement with the ME community." Link to video "Dr...

This person on Twitter has been tweeting about the conference presentations, here is his thread on Prusty's talk.

Good article but shame to see that STV have labelled it with "Mental Health" at the bottom.

Objectives To estimate the risk of Long COVID by socioeconomic deprivation and to further examine the inequality by sex and occupation. Design We conducted a retrospective population-based cohort study using data from the ONS COVID-19 Infection Survey between 26 April 2020 and 31 January 2022...

No, just the vast majority, if not almost all.

Thread created here, Evaluating the ability of patient reported outcome measures to represent the functional limitation of people living with ME/CFS 2023 Jones, Gladwell

Aim To identify activities which people with Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) report are impacted by their condition, and evaluate the ability of measures of function used by National Health Service (NHS) ME/CFS Services to represent these experiences. Method 122...

Twitter thread from Lucibee about this study where she highlights that protocol shows that the CBT used targets a "gradual increase in their physical activity".

Objective: Bodily distress, i.e., somatoform disorders and associated functional somatic syndromes, is highly prevalent, often persistent and highly disabling. It has been proposed that “third wave” therapies may be beneficial variants of cognitive behavioral treatments. However, evidence on...

Published papers thread for w/c 1st May Facebook: https://www.facebook.com/sci4me/posts/pfbid02wX78foDeqSYaiueWXjtaQayN5d3bP6tDRZwSerESEUFhbQaPyjFhxQcF7znJHAJvl Mastodon: https://med-mastodon.com/@s4me/110332073163684058

From https://reporter.nih.gov/project-details/9577948 Project Start Date 15-June-2018 Project End Date 31-May-2023 Budget Start Date 15-June-2018 Budget End Date 31-May-2019 So the projected end of the project was the end of this month, so yes, if that schedule is being kept to, then we might...

News in Brief posts for w/c 1st May Facebook: https://www.facebook.com/sci4me/posts/pfbid02upvg6N5APhJBX4YnbmR9hfCNH1TyGbQk3fxE7cZB9K7SMmY214XA2pv4n9GAm4mhl Mastodon: https://med-mastodon.com/@s4me/110327092837881519