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It looks like a 'wellness' website with emphasis on a mix of general healthy living stuff like diet, exercise, sleep, avoiding stress etc, along with the usual mix of meditation, yoga etc. The stuff in the tweet about ME/CFS is not helpful, with advice to gradually increase exercise and no...

In the UK there's the option of the Open University where you do all your study at home. I did one and a half degrees that way spread over about 15 years, but you do need to be able to keep up with deadlines with a bit of leeway on getting extensions. In the end I had to stop because even with a...

From their website: https://remissionbiome.org/planned-protocol/ I was prescribed amoxiclav once and had to stop it. I had the most horrendous abdominal pain and the diarrhoea was unbelievably bad. It's amoxicillin, which I'm fine with, combined with clavulanic acid. According to Google the...

Agreed, though I thought their made up theories about why CBT and GET work were quite enlightening in terms of how their minds work when confronted with evidence that patients aren't deconditioned, and that after CBT/GET, fitness levels don't improve. So they dismiss the deconditioning theory...

This is their website with a so called protocol which is just warnings to people not to experiment, and a treatment schedule. They are also asking for donations on GoFundMe. https://remissionbiome.org/planned-protocol/ My reaction is like yours, @InitialConditions. Neither of them is a...

Well at least the article does some good by making it clear the BPS approach is bust. And it includes warnings about people promoting unevidenced treatements. I have no problem with individuals sharing their experiences and gathering information about what people are trying so long as it's...

It's part of a special issue on Post Covid rehabilitation in the journal Physical Medicine and Rehabilitation Clinics of North America The section on treatment seems to be just a copy of a guideline we have a thread on that is basically GET with a bit of telling you to slow down if you get...

And still they get the definion of PEM wrong. It's not just worsening fatigue.

For those without access to Tweets, here's some of the converation with Adam Gaffney: davidtuller @davidtuller1 · 17h Hey @awgaffney, are you aware that the authors did not report their one objective finding--a null result for actigraphy at the end of therapy. So you're ok with the fact that...

No problem, @livinglighter. I find the whole FND thing so far outside my knowledge and experience that I generally steer clear of the FND threads. I understand it's a topic of interest here because ME/CFS is classed as FND by some people.

Sorry, I didn't make myself clear. I mean some of Stone's answers sound like he's trying to hang on to FND being psychological even if it turns out to involve neurological differences. I certainly wasn't arguing for a lack of appropriate care.

A lot of that sounds like making stuff up.

Not a recommendation https://living-from-inspiration.mykajabi.com/schedule-2023-holistic-healing-summit-for-long-covid-and-me-cfs 7 days of free online talks with speakers ranging from outright quacks to respectable researchers like Leonard Jason and Todd Davenport. The emphasis is clearly...

As far as I can see from the published paper I linked above, the only metal involved in the nanoneedle is gold.

Trying to make some sense of all this, rather than relying on my unreliable memory, I think it's worth going back to the paper they published which describes their theory of what happens: https://www.pnas.org/doi/10.1073/pnas.1901274116 Quote (breaks added for easier reading): Features of Assay...

What happens when you put healthy cells in an only slightly hypertonic solution? I have assumed this is what Ron's team did, and the healthy cells were more able to use the sodium pump to keep the cytoplasm at optimum concentration, whereas the ME cells struggled to do so quickly enough, perhaps...

I got the impression that the nanoneedle was originally being developed for a different purpose and testing it on ME cells was just an experiment, maybe suggested to the engineer by Ron. There may be something about who holds patents. That's a wild guess. That's why I like the suggestion on this...

I don't think it's necessarily true that it has failed. As I understand it's a mix of factors not to do with the results of tests. The engineer who designed it and made the prototype moving on to another job elsewhere, lack of funding from NIH, the pandemic putting a stop to all lab work for...

I don't know whether there is a difference between nutritionists and dieticians where you live. As I understand it in the UK, dieticians are the fully qualified and registered people who work with individual patients with a health problem that needs changes to diet, supplements etc...

From a Solve email: Dear Friends, By now you’ve heard directly from Oved Amitay regarding his need to step down as President and CEO of Solve M.E. over the coming months. While all of us at Solve regret ultimately losing his wisdom and collaborative spirit as our leader, we’re also excited to...