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  1. Sly Saint

    The Guardian's Science Weekly podcast - 2 November 2018 - What role should the public play in science?

    Was just reading a Guardian article from link posted on another thread and at the end of it (usually there is a paragraph asking people to subscribe) it now says: "Thanks to all the readers who have supported our independent, investigative journalism through contributions, membership or...
  2. Sly Saint

    The Triumph of Eminence-Based Medicine - Brian Hughes

    I have posted a sort of summary here: https://www.s4me.info/posts/118699/ and will shortly post the full transcript I have done. It would be good to have the slides if possible(?)
  3. Sly Saint

    Livestream Tuller and Hughes 2 Oct 2018 Newry : The PACE Trial: 'One Of The Greatest Scandals

    Some highlights from Brian Hughes presentation: "Every single thing I say about psychology can be said about the PACE trial and the way that this condition [ME] has been dealt with. And therefore I use is as sort of the climax of the whole book." "..the claim was in 2011, that positive change...
  4. Sly Saint

    Patient perceptions of post exertional malaise, 2018, Jason et al

    do these symptoms sound familiar to people? Headache or a feeling of pressure in the head Confusion or feeling as if in a fog Dizziness or "seeing stars" Ringing in the ears Nausea Vomiting Slurred speech Delayed response to questions Appearing dazed Fatigue one on the list that I temporarily...
  5. Sly Saint

    The Triumph of Eminence-Based Medicine - Brian Hughes

    put it down to doing Duolingo for the last year and a half.
  6. Sly Saint

    ME/CFS services in the United Kingdom

    South Tees NHS The CFS service Group Rehabilitation Programme for people with CFS / ME https://www.southtees.nhs.uk/content/uploads/Session-1-2017.pdf as long as this sort of stuff is peddled, asking for more ME/CFS services is maybe asking for more of the same(?)
  7. Sly Saint

    United Kingdom: South Tees CFS Service

    Copied post South Tees NHS The CFS service Group Rehabilitation Programme for people with CFS / ME https://www.southtees.nhs.uk/content/uploads/Session-1-2017.pdf as long as this sort of stuff is peddled, asking for more ME/CFS services is maybe asking for more of the same(?)
  8. Sly Saint

    ME/CFS services in the United Kingdom

    Just looking at the various regional NHS sites: Bristol...pretty bad (as you'd expect), recommend Trudie Chalders book. Worcestershire Health and Care trust: has some additional 'gems' " Personality – Evidence suggests that individuals with certain personality features are more likely to...
  9. Sly Saint

    Action for ME: The PACE trial and behavioural treatments for M.E. [position statement]

    It is also the one linked to on NHS Scotlands website: https://www.nhsinform.scot/illnesses-and-conditions/brain-nerves-and-spinal-cord/chronic-fatigue-syndrome#treatment @Emsho and the information on GET and CBT is still also cited as being sourced from AfME eta: Oxfordshire CFS clinic has...
  10. Sly Saint

    The Triumph of Eminence-Based Medicine - Brian Hughes

    I don't have any fancy software or anything, so did the last one (the Guardian podcast) the old-fashioned way, listening and typing. Your presentation is quite a bit longer, so I came up with the idea of slowing the soundtrack down (with software I use for recording/editing music) so I could...
  11. Sly Saint

    Brian Hughes (2018): Psychology in Crisis

    I suppose it depends who reads it; if say any of the PACE trial authors read it could be regarded as self-help:D
  12. Sly Saint

    Livestream Tuller and Hughes 2 Oct 2018 Newry : The PACE Trial: 'One Of The Greatest Scandals

    wessely retweeted: he seems to like a lot of guardian articles.........hmm
  13. Sly Saint

    The Triumph of Eminence-Based Medicine - Brian Hughes

    @Brian Hughes great article. funnily enough I was re-visiting your presentation (with DT) today. Would it be OK if I produced a transcript of it?
  14. Sly Saint

    The Guardian's Science Weekly podcast - 2 November 2018 - What role should the public play in science?

    From his opening sentence you could tell that Ian Sample was going to present a selective view. "In May activists rallied in New York" So no mention that this was ME awareness day, that similar protests were taking place in 100 cities across the world, that thousands of pairs of shoes were...
  15. Sly Saint

    The Guardian's Science Weekly podcast - 2 November 2018 - What role should the public play in science?

    So now I can finally comment on the rubbish spouted on the podcast and I can't think of anything to say; I used up all the expletives while I was doing the transcription:p thanks for all the thanks. I would say it was a pleasure, but having to listen to MS over and over.......
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