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Another thought, while my mind is focused on this. A study may find that there is a statistically significant difference between the mean value of substance X in the blood of pwME and the blood of healthy controls. This doesn't necessarily mean substance X is a biomarker for ME/CFS...

@AknaMontes I agree with your basic idea that we need more work done on the possible biomarkers that have been flagged up by various researchers, but as far as I can see most of those biomarkers are only testable in labs that have specific sophisticated equipment, like the work Morten is doing...

Some posts have been moved to a new thread: Biomarkers for ME/CFS - discussion thread on the next steps for testing biomarkers

And what if it turns out the test is flawed. Maybe everyone with chronic disease comes up positive, or it's related to inactivity or something. We have been down this road before. Sure some people will have the test, but any results gathered centrally will include all sorts of confounders like...

If that's true it's truly shocking but in a way also unsurprising. Some people have far too much power. I wonder whether the program makers explored other options with other broadcasters.

You've got me laughing and groaning simultaneously, @SNT Gatchaman. Does that make me a dualist? Seriously though, this is exactly what they do with ME/CFS. Even when evidence is staring them in the face they keep insisting on psychiatric/psychogenic/psychosomatic explanations.

I'm keeping an open mind on this. I hear the stories of some people on the forum like @ukxmrv and of course I believe what happened to you and am very sorry to hear that your severe suffering was dismissed by doctors for a long time. Whether the symptoms were caused by the vaccine or not, they...

I agree, Hutan. I certainly experience increasing pain and weakness in muscles during activity which I would define as fatiguability, or exertion intolerance. I also experience PEM later if the activity was beyond my current limit. It's not either/or, we can have both.

I agree with all the cautions expressed. However compelling a case and clear outline with suggested presenter, speakers etc we may provide, once it's in the hands of producers, executives calling for balance etc, it's completely outside our control, particularly on the BBC who will feel...

My fear would be that, as others have said, the remit of the BBC for 'balance' will allow the ME/CFS equivalent of flat earthers to hog half the program. I'm imagining Wessely, Sharpe, Chalder, Crawley, Garner ... putting up a big fight to be heard. The SMC and NHS England will be consulted...

It's a preprint website and it tells me the same thing when I click on the link for the PDF. No idea why.

That's shockingly awful, @wastwater. I hope you can appeal.

The conclusion makes it clear that the authors don't understand that there is a difference between - exercise intolerance due to deconditioning following prolonged hospitalisation or due to cardiac and pulmonary problems, which clearly do exist for some patients and may be improved with...

The article contradicts itself. According to the WHO the estimate is 10-20% of people infected with SarsCov2, not of the whole population.

About the journal Cureus

The authors are medical students and staff at the University of Hawaii. Edit: And the corresponding author is a professor of Neurology. So I guess it was done as a student project and the professor is clueless about ME/CFS.

First major survey of doctors with Long Covid reveals debilitating impact on health, life and work by BMA media team Press release from the BMA Location: UK Published: Tuesday 4 July 2023 Key findings include: Doctors reported a wide range of symptoms, including fatigue, headaches, muscular...

I think this imbalance is inexcusable now that we know from several studies that some biomedical findings differ significantly between male and female subjects.

The trouble with individuals paying for tests that haven't been validated by replication studies is that you don't necessarily get useful data. Look at the XMRV mess, and the tests maverick UK doctor Sarah Myhill used that turned out not to replicate.

A video interview with Prusty has been moved to Research news from Bhupesh Prusty