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I have experienced, ME loss of available energy (for lack of a better explanation) and need to lie down, very low ferritin fatigue (weepy type of tired fatigue), and now menopause full stop unable to walk another step fatigue. They ALL feel different. My healthy (now 60 yr old)...

A doctor finally tested my ferritin a few years into ME and my level was at 4. I took iron supplements regularly for years. My doctor didn't understand why my levels dropped so quickly and later realized that I had absorption issues, and undiagnosed h pylori. I felt a different type of...

There is nothing remarkable. "Is Long-Covid stirring up other underlying chronic infections?" Dr. Hyman going to try to sell you his books by subscribing to his newsletters on 'treatment' and lifestyle changes, and how he cured himself of 'CFS' that could help LC pts.

Virios currently holds 20 patents that include composition of matter, a unique synergy patent and method of use patents for FM, IBS & CFS patents. as well as Functional Somatic Syndrome (recently renamed the Somatic Symptom Disorder (SSD). These additional chronic conditions represent a...

Long-Haulers beware of what's in store for them:

Moved from this thread: FraudListing.com: a project to keep track of quack treatments for ME Gotta love our local doctor calling out Dr. Hyman pseudoscience guru hyped-up 'detox' programs :laugh:

https://pubmed.ncbi.nlm.nih.gov/33486983/ A research team led by finds endothelial dysfunction plays a key role in postural tachycardia syndrome, leading the way toward targeted treatment for this poorly understood condition...

"7. In cases where symptoms have persisted for more than three months, and are consistent with those of ME/CFS, a diagnosis of Long or Post-covid ME/CFS should be considered. The diagnosis should be confirmed through the process of a careful clinical assessment". "Long Covid and ME/CFS Where...

Interesting. I started getting reactivations of viruses in 2001 soon after taking vitamin D regularly. I have stopped taking it on and off for a few weeks over the years and seem to feel 'better', but dismissed the correlation. Now that summer is here I'll be absorbing natural vitamin D...

There are different strains of h pylori, some are highly virulent and can develop into gastric cancer. The strain I had was making my symptoms worse and worse over the years. My grandmother died of gastric cancer. Possibly some genetic strain?

My understanding is that respiratory physiotherapistsl address respiratory and peripheral muscle weakness, deconditioning and physical inactivity. I can see damage being done to pts with PVF states.

Maybe it's only Canada then since we have the highest rate of MS in the world? I took cod liver oil many years ago and it barely raised my D levels, and may have put me over the ref range for vitamin A.

It seems the one supplement most GP's recommend in general for all their patients is vitamin D.

I think a cardiologist is a better specialty for ME than a neurologist.

The guidelines changed in Canada several years ago. In general, results of less than 25 nmol/L point to a vitamin D deficiency, while the range between 25 to 75 nmol/L signals a potential deficiency. A good mid-point is 76-250 nmol/L - below that number signals deficiency and above suggests...

https://www.eurekalert.org/pub_releases/2021-04/mdcf-tms043021.php

I consider myself 'fit' if I can still lift my cast iron lid off of my Dutch oven.

I've had ME for 30 years. Sudden viral onset and PVFS for 5 years or so. Started improving with no noticeable viruses for 6 years after that. After taking immune modulators in 2001 and relapsing (reactivating HHV6 and EBV), I continue to have reactivations for the last 20 years...

Yes, very good point regarding ME. But LC are not gradual onset.

Actually no, the advice didn't make sense to me at all, and I believe most people with LC will start exercising more despite warnings. The problems is that I couldn't walk/stand or do much at all in the first 5 yrs of illness. I didn't need anyone suggesting or telling me how to move...