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  1. Andy

    Course of fatigue among patients previously hospitalised due to COVID-19 2023 Mazurkiewicz et al

    Abstract Introduction. Discrepancies exist regarding the clinical course and prognostic factors for post-COVID fatigue. Therefore, our aim was to assess the timely course of fatigue and its possible predictors in patients previously hospitalised due to SARS-CoV-2 infection. Material and...
  2. Andy

    Dynamic modeling of experience sampling methodology data reveals large heterogeneity in [BPS] factors associated w/persistent fatigue... 2023 Nijhof

    "In the present study, we derive dynamic single-case networks from the ESM data of 31 persistently fatigued young people living with a chronic condition (i.e., Q-Fever Fatigue Syndrome (QFS), Juvenile Idiopathic Arthritis (JIA), CFS/ME and long-COVID). Conceptualizing fatigue as a generic...
  3. Andy

    Dynamic modeling of experience sampling methodology data reveals large heterogeneity in [BPS] factors associated w/persistent fatigue... 2023 Nijhof

    Full title: Dynamic modeling of experience sampling methodology data reveals large heterogeneity in biopsychosocial factors associated with persistent fatigue in young people living with a chronic condition Highlights • Individual dynamic single-case networks complement group-level research. •...
  4. Andy

    UK: Physios for ME

    "#pwme we are submitting a funding proposal for taVNS and are trying to identify what inflammatory panel to use. Two helpful studies - Trianinos et al and Rodriguez et al - any thoughts?" I'm assuming taVNS is Transcutaneous Auricular Vagus Nerve Stimulation.
  5. Andy

    Long Covid in the media and social media 2023

    Where do you think they should be? I would imagine that, just like the ME community, the vast majority are trying to deal with the devastating effects of their condition, while the few who are able to engage in advocacy are trying to do what they can with the limited amount of energy available...
  6. Andy

    Long Covid in the media and social media 2023

    Author is Peter Wark, Conjoint Professor, School of Medicine and Public Health, University of Newcastle, AU.
  7. Andy

    World ME Alliance, was previously IAFME: International Alliance for ME

    Engaging with the WHO over disability health equity "Following our letter to the World Health Organization (WHO) highlighting critical gaps in their “Global report on health equity for persons with disabilities”, we have met with officials to discuss our recommendations. This was a positive...
  8. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    Blog: A visit to the UK Biocentre, https://www.decodeme.org.uk/a-visit-to-the-uk-biocentre/ "Claire Tripp – Patient and Public Involvement Team Member Last month, I visited the UK Biocentre in Milton Keynes, along with Prof Chris Ponting and Dr Diana Garcia, the DecodeME project manager at the...
  9. Andy

    Long Covid in the media and social media 2023

    Always a good look, blaming chronically ill advocates for something that, as far as we know, he himself hasn't done himself.
  10. Andy

    Non-Pharmacological Therapies for Post-Viral Syndromes, Including Long COVID: A Systematic Review, 2023, Singh Chandan et al

    "A key challenge with these interventions (Pilates, resistance exercises, and neuromodulation) relates to their scalability, which is particularly important when considering the scale of the public health burden in a context of limited health service capacity. However, these therapies were not...
  11. Andy

    Non-Pharmacological Therapies for Post-Viral Syndromes, Including Long COVID: A Systematic Review, 2023, Singh Chandan et al

    "Based on our study inclusion criteria, we were unable to find any trials conducted to support patients with ongoing fatigue symptoms following confirmed viral exposure. However, a recent systematic review with broader inclusion criteria, which included both pharmacological and...
  12. Andy

    PERCEIVE study (GET for Long Covid): Baker Heart and Diabetes Institute, Australia

    For reference, Clinical Trials listing, https://clinicaltrials.gov/ct2/show/NCT04983823
  13. Andy

    International: Science for ME social media posts

    News in Brief post for w/c 13th Feb. Facebook: https://www.facebook.com/sci4me/posts/pfbid0LXPpL8GLgKkhUdj73bitrbHA1XZh2Gp1bGTS72JzcmpM89uRdZd9Tps9WSdcJsR2l Mastodon: https://med-mastodon.com/@s4me/109891558067870821 Published papers thread. Facebook...
  14. Andy

    Seasonality of human sleep: Polysomnographic data of a neuropsychiatric sleep clinic 2023 Seidler et al

    While short-term effects of artificial light on human sleep are increasingly being studied, reports on long-term effects induced by season are scarce. Assessments of subjective sleep length over the year suggest a substantially longer sleep period during winter. Our retrospective study aimed to...
  15. Andy

    Trisha Greenhalgh on ME/CFS and Long Covid

    Given her previous actions I assume that Karen West and Starkadder are now blocked by TG.
  16. Andy

    WHO releases clinical case definition for post #COVID19 condition or ‘#LongCovid’ in children and adolescents

    "Long Covid Kids welcome the publication of a WHO clinical case definition of Long COVID in children and young people. This was much needed and provides parity with the definition for adults. The definition was developed during a joint exercise between experts and community members with lived...
  17. Andy

    Event: NASEM: Toward a Common Research Agenda in Infection-Associated Chronic Illnesses: A Workshop

    Organising committee, https://www.nationalacademies.org/our-work/toward-a-common-research-agenda-in-infection-associated-chronic-illnesses-a-workshop-to-examine-common-overlapping-clinical-and-biological-factors#sectionCommittee CO-CHAIR Timothy Coetzee CO-CHAIR Timothy Endy MEMBER Brian...
  18. Andy

    Associations among serum VEGF and CGRP levels with the peripheral vascular blood flow of the skin of the hands in women with FM 2023 Casas-Barragán

    Abstract Background Fibromyalgia (FM) is a long-term condition of unknown physiopathology, whose hallmark symptoms are diffuse musculoskeletal chronic pain and fatigue. Objectives We aimed to analyze the associations among serum vascular endothelial growth factor (VEGF) and calcitonin...
  19. Andy

    Inhibition of inflammatory microglia by dietary fiber and short-chain fatty acids 2023 Caetano-Silva et al

    Abstract Microglia play a vital role maintaining brain homeostasis but can also cause persistent neuroinflammation. Short-chain fatty acids (SCFAs) produced by the intestinal microbiota have been suggested to regulate microglia inflammation indirectly by signaling through the gut-brain axis or...
  20. Andy

    Fatigue, not self-rated motor symptom severity, affects quality of life in functional motor disorders 2018 Gelauff, Stone, Rosmalen et al

    Abstract While fatigue is found to be an impairing symptom in functional motor disorders (FMD) in clinical practice, scientific evidence is lacking. We investigated fatigue severity and subtypes in FMD compared to organic neurological disease. Furthermore, the role of fatigue within FMD and its...
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