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As far as I can see it's a one woman campaign which has somehow managed to get Solve to throw their support behind. I've skipped in and out of the video of the event at Santa Barbara. To me it looked pretty small and amateurish. If that was the launch of a big campaign, I'm not impressed, but...

Personalized treatment trials We will partner with a small team of clinicians in Melbourne to recruit 200 patients for this trial.* The plan? Collaborate with clinicians to monitor the biological effects of prescribed treatments. The understanding of successful and unsuccessful treatments will...

Sounds interesting, but what treatment might he be referring to I wonder. I hope they will reveal a lot more information. Whoever wrote the announcement swallowed the superlatives thesaurus. Just in the first couple of paragraphs we have: thrilled, exciting, incredible, unprecedented...

That's appalling. I notice at the bottom it gives a link to how to do an FOI request to Oxford University. Does anyone have the energy to ask them for the chain of correspondence that led to the decision to give the article such unwarranted publicity? Crossposted with Dolphin.

I had completely forgotten we'd tested it before too. We came to the same conclusion then, that it's designed for a computer with mouse, not a touchscreen.

I've been thinking more about this since I commented positively earlier today. I imagined myself being in such a group for 8 two hour sessions spread over 16 weeks having to listen to a bunch of strangers talking about their symptoms and setting goals etc, and having to join in the game, and...

It is horrendous that one man can wield such dangerous power over very sick people and force them into treatment that makes them even sicker. I am so sad to read this is still happening in Denmark.

Agreed. It's probably mainly used in a clinic on the clinic's computer, so they will be able to compare patients as well as track changes in individuals. I think I'll have a go at tracking mine. It would still be potentially useful for ME research, I think, including as part of longitudinal...

Just tried it on my phone: average 1068 over 23 attempts. Not only did it not register a few times so I needed to touch the screen again, but it also more or less doubled the time from when I touched to when it registered. You can see it counting off in milliseconds, so it was obvious. I think...

I was doing it with a mouse, not a touchscreen. I guess that makes a difference. I'll try it sometime with a touchscreen to see if it works for me.

I thought about adding a poll, but it's hard to allow on a single list of options for all the possible variations in different factors like time of day, severity level, whether in PEM or not, and scores on the test. So let's just each do our own record keeping if we're interested, and post here...

Some posts have been moved to: Psychomotor Vigilance Test - discussion and testing

Result today: Average response time 459 msec over 26 attempts. Test taken about an hour after having a shower with hair washing, which exhausts me.

Given that the aim of the therapy is to help people adjust to their illness, learn to pace better etc, not to increase activity, I don't think it needs to include actigraphy. That would give a false view to the participants and incentive to the therapists to get them to try to do a bit more to...

Neither my daughter or I have had covid because we're still isolating apart from occasional visits from a couple of family members who test before they come. I suspect quite a lot of uninfected are similar. The problem is we already have symptoms that overlap with long covid, so we're useless as...

So true, and harmful to others, if only they knew. Yes, in this case. However there are limits to my sympathy when it turns into active campaigning and denigration of others, think Live Landmark, Paul Garner...

Study in Finland involved a group of patients in planning in advance. I was concerned to see words like goals and rehabilitation, but it seems like goals were things like learning to pace better, and methods for relaxing, and using peer support, which is fine. There's all the CBT stuff...

It works fine for me. I just go to the top of the article where there are headings: Article, Related content, Metrics, Responses. I switched easily between them. Edit: The Article is the paywalled one by Elisabeth Mahase in BMJ, not the one by White et al in JNNP, which last time I looked had...

Does this indicate that the diagnosis of so called pain catastrophising is actually finding people who are in greater pain and therefore should be expected to find it harder to cope with? Is 'catastrophising' a false, patient blaming concept that is actually detecting the clinician not taking...

If sugary drinks are too hard to organise you could drink water and eat something high in sugar like a banana, grapes or raisins. Another thing to consider is how long you need the effect to last. Sugar in some form would give a quick lift in blood sugar then it drops quickly. Maybe have...