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  1. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    So far what I'm seeing of people maintaining that line is that they completely ignore the asymptomatic or mild cases, asserting they must not have had Covid (and obvious ignoring the fact that many did test positive). Basically fingers in ears shouting LA-LA-LA-LA.
  2. rvallee

    Cost-effectiveness of interventions for medically unexplained symptoms: A systematic review, 2018, Wortman et al

    Reality literally outdoing satire. This Simpsons joke is a totally childish gag and this guy actually seriously does something that is above and beyond even the most satirical interpretation of that joke, because in the Simpsons episode it's actually followed by Homer writing it all down and...
  3. rvallee

    UK House of Lords/ House of Commons - relevant people and questions

    Ah well if they "would expect" then it's all good then, no need for anyone to do anything, this clearly takes care of itself. They are objectively not capable, though. But it's not as if any of this actually matters.
  4. rvallee

    Central Sensitivity and Fibromyalgia, 2021, Mezhov et al

    Those things are mutually exclusive. Something cannot be a metadescription of a group of somethings while at the same time their core process. Just ending the word differently to describe either changes nothing, this is an alleged process that has never been shown and is as compelling as "this...
  5. rvallee

    Guest Blog MEA: The Shame

    Personally I'm not ashamed, I just know this is something that may make other people hurt me if I mention it. So I don't. Not out of shame, but because it is used to hurt me, including by people who can exert enormous power over my life. Definitely more annoyance than shame, but I basically...
  6. rvallee

    Interventions that manipulate how patients report symptoms as a separate form of bias

    Worth doing but a lot of work. But yeah none of the issues with how bad BPS research in ME is are unique to research on ME, it's wherever psychology has a say that all standards just completely collapse down to zero and bias is actually not only good but necessary. Basically the entire concept...
  7. rvallee

    Microbiome-encoded bile acid metabolism modulates colonic transit times, 2021, Li et al

    Not to judge but I doubt that eating 3 mice per day makes for a healthy diet unless you're a cat.
  8. rvallee

    Characterizing Long COVID in an International Cohort: 7 Months of Symptoms and Their Impact, 2020, Hannah Davis et al

    Doesn't explicitly state this paper but it obviously played a big role in this. Imagine that, patient involvement in research is actually useful, medicine's pervasive refusal does not change that fact, and neither was the initial reaction of some opinion-havers, one who dismissed this paper as...
  9. rvallee

    The COVID Long Haulers: Facing the Cognitive and Physical Consequences, June 22, 2021

    Many COVID-19 survivors of all ages experience alarming neurological and physical signs and symptoms post-infection. Dementia-like symptoms, including memory loss and confusion—described as "brain fog"—are lingering burdens for some, while others confront an array of physical symptoms including...
  10. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Not sure when and if deadline passed but...
  11. rvallee

    Lancet letter: Long COVID has exposed medicine's blind-spot, 2021, Burke and del Rio

    It basically also pretends that this is all new stuff, never-been-tried and must be researched all anew, we must be willing to try it all over again while also accepting that there is evidence for it, two mutually exclusive realities that must be accepted, just because. As if the current...
  12. rvallee

    Lancet letter: Long COVID has exposed medicine's blind-spot, 2021, Burke and del Rio

    As many others have pointed out, the clusters of symptoms reported by patients post-COVID-19 are not unique or specific to long COVID. Patients with similar assortments of chronic symptoms are commonly encountered in neurology, rheumatology, infectious diseases, and other subspecialty clinics...
  13. rvallee

    [POTS]: State of the science and clinical care from a 2019 [NIH] Expert Consensus Meeting, 2021

    (Very unsure where to put this, not quite guidelines, related to ME, but not research either) (Also unsure why it took 2 years to publish this but it's new) Part 1 of 2 (according to this tweet). https://www.sciencedirect.com/science/article/pii/S1566070221000588 Abstract Postural...
  14. rvallee

    Development and testing of new vaccines against EBV and other viruses

    The possibilities are amazing. My memory may be failing me but I think I saw one for asthma in development. Although there is of course the issue of whether it protects against whatever is the long-X process that can lead to ME and other chronic illness, since preliminary evidence suggests it...
  15. rvallee

    Development and testing of new vaccines against EBV and other viruses

    Moderna appears to be developing several mRNA vaccines for EBV and other viruses It's an investors' document but it lists several mRNA vaccines in various phases of development for some of the ME-causing viruses: CMV, EBV and some flu strains. CMV appears to be in phase 2 development. EBV could...
  16. rvallee

    UK: TUC (Trades Union Congress): Long Covid at work surveys and reports 2021 onwards

    A trade union understands this medical issue better than 90%+ of all medical and public health organizations. This is an actual factual sentence. Amazing.
  17. rvallee

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Are you questioning the beauty of the emperor's new clothes? That's a paddling. Cultural pressure is one hell of a drug.
  18. rvallee

    News from Africa

    A thread for news from Africa, excluding South Africa which has its own thread, and North African countries in the MENA grouping which have their own thread. Not that any of this matters to the people pushing the garbage about "secondary benefits" and "cultural illness", but this obviously...
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