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    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    If you look at the wider issue of IT systems in UK ( Brexit, PPE procurement, Test & Trace app..), then we do seem to have an intrinsic problem with IT - it continues to servve some well though
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    Australia: Congrats to Daniel Missailidis: Young Achiever Award winner 2021!

    Fantastic news ! Well done Daniel
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    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    Sounds like Jim Coyne would have a field day- trauma ( therapy/ attribution etc ) is one of his recent concerns
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    Trial By Error: CBT and Irritable Bowel Syndrome

    £££££ It was ever thus
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    Muscles query

    Thank you. This winter is a struggle, but she remains stoic . If we could improve one thing, that would be a great result .
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    Muscles query

    Thanks @Jonathan Edwards, this particular issue has been raised for some time in phone consultations to no avail: at least I have managed to argue the case for a home visit this time which should hopefully help. When you are disbelieved regularly it is sometimes good to know that you are not...
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    Muscles query

    She does use extra salt, as some OI issues , but as everything is going out of whack it may not be enough. As GP will only do standard blood tests, I don't know to what extent things will be picked up.
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    Muscles query

    I can absolutely relate to the inability to fully relax muscles - definitly part of the issue.
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    Muscles query

    Thanks Kitty It was similar to your description , and there is a baseline which ramps up from, but it is getting more acute and baseline has shifted too. Heat does help , but now have " toasted skin syndrome" from the hot water bottles on neck and stomach - and heat does make you overheat. A...
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    Muscles query

    Winter sees a downturn for my daughter and she is having real issues with muscles - this post is to sound out how " normal" her experience is for ME, in case it's not! i have managed to organise a GP home visit next week which will deal with this and some other issues, but any info gratefully...
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    Covid-19 vaccines and vaccinations

    Great explanation
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    Clinical Characteristics, Activity Levels and Mental Health Problems in Children with Long COVID: A Survey of 510 Children, 2021, Buonsenso et al

    This
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    Covid-19 vaccines and vaccinations

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    Persistent Suffering:The Serious Consequences of Sexual Violence against Women and Girls, Their Search for Inner Healing.., 2021, Sigurdardottir et al

    " Body keeps the score " stuff .
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    BMJ: Rapid response to 'Updated NICE guidance on CFS', 2021, Jason Busse et al, Co-chair and members of the GRADE working group

    This. I don't think.people realise how difficult it us to not do things. For children especially , the urge to regain abilities can be acute. Schools push and try and ramp up, friendships are strained when promises are broken: the deliciousness of a good day, and the accompanying adrenaline...
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    Covid-19 vaccines and vaccinations

    Just as long as there are no parties at your house now Trish. ....( attempt at humour) This seems to be a big problem, people equating vaccination with immunity. Bits popping up on media and news re Parties for the inoculated. A caller to LBC yesterday painted a vi I'd pocture of loud noise...
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    But can the twaddle be GRADED ?
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    Aluminium based adjuvants and a disease hypothesis by Gherardi

    Gardisil (hpv) had aluminium in original formulation. ETA link https://www.rxlist.com/gardasil-drug.htm
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    Covid-19 vaccines and vaccinations

    One of my daughter's friends is a GP . 2nd dose of Pfizer much worse after effects than first.
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    Central Sensitization in Neurological, Psychiatric, and Pain Disorders: A Multicenter Case-Controlled Study, Suzuki et al, 2021

    Not my idea.i recall Mike Ekzakker flagged this up a couple of years ago, how the term was being bastardised to shift agendas I didn't bookmark the reference, but it seemed pertinent. CSS seems to have taken off since in BPS world
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