Yes @cassava7 I am generally pretty relaxed with people but overexerting/OI results in me getting unusually snappy. Even though I don’t have any ‘diagnosis of OI’
One point on weight of PWME is that Amitryptiline seems to be commonly prescribed for insomnia/pain. Increased appetite/weight gain is a common side effect.
As I often mention I had gradual onset the specialist I saw privately said there were a substantial minority group of gradual onset PWME i think he said 35%. I think I’ve also seen a mention of this in the MEA purple book but could be wrong.
There’s a lot we don’t do right in the U.K. but I double checked and transcripts of evidence before parliamentary committees are available the following day just like proceedings in the main chambers and legislative committees.
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