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  1. rvallee

    Radio 4 and 5 Live Put IAPT Under The Microscope - Nov 13 2019

    Well, that's the PACE model: make shit up, break everything, provide no benefits whatsoever, give yourself a perfect grade. That's just the BPS wayTM.
  2. rvallee

    Correction: CFS/ME is different in children compared to in adults: a study of UK and Dutch clinical cohorts. 2019

    More whitewashing. Still listed under research. Retroactive exemption from having failed basic (optional) requirements. The original article doesn't appear to have been updated so one would have to look for the correction to find it. This is all a sham. Zero respect for the most basic...
  3. rvallee

    Action for ME: GP home visits under threat

    Yes! I mentioned home visits here but for most circumstances telemedicine would work just as well. I am skipping going to see my GP this year because it's frankly an ordeal and doesn't make any difference. However a short video chat would probably work just as well. Not much has changed since...
  4. rvallee

    News from Aotearoa/New Zealand and the Pacific Islands

    At some point it'd be really great if people, especially in medicine, stopped using the same tired old trope of people seeking attention and magical benefits of pretending to be sick when it is shown over and over again how it completely defies all common sense, that it's not even worth the...
  5. rvallee

    Action for ME: GP home visits under threat

    Have they ever met sick people? How are people who work in this field unaware that there are sick people out there who are too ill to leave the house? They don't understand either that this does not magically make those people less sick and thus "motivated" to go to the clinic? Or just don't...
  6. rvallee

    Daily Telegraph: Why do we tell women they're mad, when they're really ill? Nov 18 2019

    Timely link I found on the CFS sub-reddit: https://people.com/health/extreme-dry-eye-left-fox-news-shannon-bream-suicidal-i-was-in-pain-all-the-time/. Eye pain of a kind intense enough some patients suicide. Told she was hysterical. Found a diagnosis herself through forum. Treatment worked, not...
  7. rvallee

    Daily Telegraph: Why do we tell women they're mad, when they're really ill? Nov 18 2019

    There really is a shocking number of physicians out there who put their personal opinion far above the lives of millions. That's definitely not optimal. No wonder so little progress is being made when decades are wasted on insisting that it's the patients who are wrong.
  8. rvallee

    Podcast: CBT for Chronic Fatigue Syndrome: Dr Lucy Maddox, Trudie Chalder

    That's a blatant lie. No excuse for this. It's a grotesque lie.
  9. rvallee

    Podcast: CBT for Chronic Fatigue Syndrome: Dr Lucy Maddox, Trudie Chalder

    That literally contradicts the CBT model, that we need our thoughts and behaviors changed. Wanting to change is not consistent with having to change behavior. It undercuts the whole model as fully as dropping actimetry because PACE participants are reasonably active while the very model is...
  10. rvallee

    Podcast: CBT for Chronic Fatigue Syndrome: Dr Lucy Maddox, Trudie Chalder

    Over 2 decades and still only ever have anecdotes to show for it. Zero refutation of all the evidence against, always trotting out anecdotes and personal feelings, dangling some ridiculous hope that it may just work eventually. 2 decades used in practice in many countries. Thousands and...
  11. rvallee

    The unifying diagnostic construct of bodily distress syndrome (BDS) was confirmed in the general population, 2019, Fink et al

    Awards. Recognition. Fame. Self-serving ego stroking. All of which are more important that literally millions of lives. People involved in these psychosomatic ideologies seem to think of us as mere statistics, not much different than lego figurines. They have built paper-thin caricatures of who...
  12. rvallee

    British Psychological Society: Should some psychologists have the option to prescribe medication?

    Especially as the most likely to be prescribed drugs will be antidepressants and even most psychiatrists are either oblivious or in denial about the severe side-effects and withdrawal. ADs have their use but they are already prescribed irresponsibly as it is. This will only grow a problem that...
  13. rvallee

    Still to open How to make patients who aren't engaged in the patient community aware of studies recruiting?

    Yes, this is critical. The "validation" that sick people need is not for ourselves, it's for everyone else. Modern societies have a social contract in which we defer all medical expertise to a single profession. Included in this contract is the determination of who is sick and who isn't. When...
  14. rvallee

    Daily Telegraph: Why do we tell women they're mad, when they're really ill? Nov 18 2019

    But the underlying problem isn't of mental illness but of fobbing off sick people as not being a medical problem, with the assumption of some form of madness or hysteria. The end result remains the same: no medical care, no support, no accommodations, no disability and he is responsible for a...
  15. rvallee

    Selective effects of acute low-grade inflammation on human visual attention (2019) Balter et al.

    And of note that this was mild inflammation. I really hope they can pursue this and use a gradation scale of severity and how it relates to performance. At some point there should be a significant drop in performance, especially in sustaining it past a certain point. Not sure if it's even...
  16. rvallee

    The unifying diagnostic construct of bodily distress syndrome (BDS) was confirmed in the general population, 2019, Fink et al

    Imaginary category invented to encompass specific characteristics was indeed found to describe things it set out to describe. Using this logic the old construct of natural materials (earth, fire, water, air) was also shown to contain those things because there are such things out there that can...
  17. rvallee

    News from Scandinavia

    Very symbolic that the precedent for this judgment is from nearly the exact same mistake and for identical reasons. It's grotesque that this is almost entirely the fault of medical professionals and institutions. The despair that leads to situations like this is almost entirely the product of...
  18. rvallee

    Effects of mirthful laughter on pain tolerance: A randomized controlled investigation, 2019, Lapierre et al

    I laughed when I first searched the definition and came up with "full of mirth". Thanks, chief. But yeah it's pretty redundant and repetitive.
  19. rvallee

    Towards an institute for patient-led research - Trish Greenhalgh, BMJ blog November 12, 2019

    I'll give it another day and re-submit tomorrow. Still pending. Weird how one of the comments is timestamped as 3 days ago yet only appeared today.
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