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I think this is our greatest threat, that they manage to so impoverish and discourage biological research that it effectively stops. It is not clear that there is currently a sufficiently robust bio research stream that can withstand this relentless war on technical and ethical standards by the...

Into what? A psychodrama morality play? We could start selling badges/hats/coffee mugs/etc that say: I survived the psychosomatic cult.

But I'm a crowd-funded academic... So, you brazenly admit it? Have you no shame? :emoji_upside_down:

Not to mention very nasty and highly defamatory.

Ironically, for ME/CFS at least, it was Wessely who showed early on that hyperventilation was not a feature of the condition.

Yeah, this is not news. Though certainly good, necessary even, to have it specifically looked at in the ME/CFS context.

Always playing the underdog, both the victim and hero, despite being neither, is a standard propaganda technique.

Not to mention highly defamatory towards [checks notes] anybody who dares question the Great Man, but especially patients.

Big Pharma would never allow it. :speechless:

A useful reminder to anybody who thinks we are too strident or harsh in our criticism of cruel jokers like this. And they wonder why we hate them. Real mystery that.

:thumbup: Keep kicking them while you have the advantage.

I too see no reason to conclude they are different diseases. Could just as easily be due to different levels of severity.

Ditto integrity.

...evidence that the distribution of numbers of participants withdrawing from the trials was implausible, frequently contradictory reporting of the size of participant populations, implausibly prolific research activity, unethical conduct, and very frequent discrepancies between trial...

If there was a disease process underlying ME/CFS it would have already been found. No matter the cause, organ damage/disease is quite easily identified with current tools – clinical exam, routine bloodwork, and diagnostic imaging. And yet important discoveries continue. Not ME/CFS related (far...

To develop the CAN-PCC guidelines, McMaster University’s GRADE Centre collaborated with Cochrane Canada, an arm of the Cochrane Collaboration. I think I am on the verge of spotting the problem here.

Good interview, and good for Dutch patients to have somebody like Zurhake on the case. :thumbup:

The similarities between Long COVID and ME/CFS have given researchers new urgency to find real solutions. Many of us in functional medicine... I stopped reading there. Anytime I see the word 'functional' in this context I see a major red flag with Snake Oil Merchant written all over it.

I am not expecting any serious issues for the vast majority of patients, who I think will simply start getting on with what is left of their lives. The biggest problem is going to be stuff like recovering financially, and dealing the often decades long extreme trauma and personal loss many of...