ME Association press release and blog:
Government-funded ME/CFS trial ‘one of greatest medical scandals of 21st century’
http://www.meassociation.org.uk/2018/02/government-funded-me-cfs-trial-one-of-greatest-medical-scandals-of-21st-century-20-february-2018/
With additional comment from Carol...
What I was unable to discern from the write-up was the methods they will employ to examine these 'sickness response' mechanisms in the brain (assuming they find them). I read all the blurb but there didn't seem to be anything relating to recruitment, assessment, testing, etc. But after the PACE...
You can watch it again using the same link as the live debate - just slide the bar back to the PACE Trial. But I believe it will be published as a separate recording at some point. I'll post the link when I write up Dr Shepherd's notes later in the week...
The article was of course referring to the length of time since publication of the PACE Trial.
I thought Carol Monaghan deserved a medal. Brilliant speech. Wouldn't mind getting hold of it to publish on the ME Association website.
Anyone know what MRC-funded study into brain function and...
Thank you Trish. We're aware of the paper and its pending publication. Carolyn was in touch with Dr Shepherd about it quite recently.
Dr Shepherd met with Carol Monaghan MP in Parliament earlier this afternoon. Once he's back home we should know more about the debate.
It was interesting...
Morning,
The ME Association was contacted by Ms Monaghan's office yesterday just after the ballot was drawn. We didn't know anything about it beforehand.
Dr Shepherd is away on business today, but is hoping to speak to her later this morning I understand. We have also this morning sent her...
Lucy's letter in response was published in the Lancet in October 2017:
A case for retraction?
Lucy Bailey
http://www.thelancet.com/journals/laninf/article/PIIS1473-3099(17)30527-3/fulltext
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