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If that reasoning held water it would undo the history of pretty much every known disease, i.e., every disease would be rooted in psychological factors - until technology or innovative/lucky thinking found a biomarker. So all diseases would be assumed psychological until Science finally catches...

"A systematic review and meta-analysis by Bai et al. (2019) clarified a panel of cytokines that exhibit great potential to be used as biomarkers for MS. It was found that CXCL13 was consistently increased in both blood and CSF samples, thus allowing MS patients to be distinguished from healthy...

Morten speaking about the study, apparently, here Saturday October 21. https://www.ilads.org/ilads-conference/2023-annual-conference-boston/ It's an ILADS event.

We had a member here some years back who I think felt ME/CFS was down to misfolded proteins, maybe even related to prion disease. She (?) was usually pretty measured about how she conveyed her suspicians, or at least that's how I recall things. I do not remember her name, but I do remember...

Thick blood. Is there such a thing as thick CSF? The last time I had a spinal tap it took close to 90 minutes to collect the fluid, and even then they had me strapped to a gurney which they had to turn upward at like a right angle - I guess to get gravity on their side. I was literally upside...

Yes. It's how he is packaging ME/CFS, for lack of a better word. I think you are alluding to the genetics thing, but the whole little tangent seems off somehow.

Will he work with Baraniuk, I wonder. Curious that he didn't call it CFS, that he knew to call it ME/CFS, but that he'd characterize it in such a tone deaf manner. How'd he get here? Seems like a bunch of assumptions folded into this observation. ETA: It's easy to read stuff into a what is...

Yay. Free Press. Oh dear.

I don't know if anything is permanent or even damaged. Whatever process is amiss, though, needs to be remedied. For me, if there's a priority, it's fixing my brain. The headache, the balance, the Stupid. Unfortunately, I keep hearing that bit by Ron White, You Can't Fix Stupid. It still makes...

I suspect there are people within these groups whose job it is to generate the press releases and ensure they're disseminated and picked up. It's an embedded and costly utility to promote. It was one of my responsibilities in the research firm I worked for before I grew too sick. Take a subject...

Speaks to lazy journalism as well.

Well, sure, and isn't that the point? To assist clinical judgment? As for predictive value, I'm sorry, but reliably predicting what is going to happen isn't necessarily part of the deal., e.g. many pathogen-based diseases, particularly in acute cases, but more contentiously in late or post...

Perhaps I'm misreading this, or it can be chalked up to awkward wording, but I am unaware that anyone has irrefutably demonstrated yet that ME/CFS has a clear heritable component.

Reality? The reality is our's is a contested disease, and we need a diagnostic that cannot be contested. Moreover, we're not alone in that regard. That is not required of many diagnostics. It seems to me that really should fall under disease characteristics.

I wouldn't even presume to ask for so much. Just a simple gold standard positive or negative for something definitive. That's my porridge. Something that cannot be disputed or dismissed or even minimized.

We do, yes. But I doubt things will be so fortunate as that. Nice to consider, though. I would, in particular family, family first and foremost, but yes, all those rat schmucks who mischaracterized and lied about us at our lives' expense. Give me an unequivocal yes/no diagnostic. I've already...

It's seldom good to be part of a minority. :(

I can think of a half dozen or more diseases - off the top of my head - where I could not care less about learning more about the disease process, politically. All I would want is a reliable yes/no diagnostic, at least in the near term. It might not move science forward, but it immediately...

The plural use of syndrome is weird. Seems like an anemic attempt to disappear CFS as a discreet entity. Or maybe just a silly gesture to provoke people like us? It strikes me as a peculiar brand of juvenile.

Chronic Fatigue SyndromeS? By adding that extra "s" they really devalue ME/CFS, don't they?