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The simpler take-away is a PCR is lacking as a diagnostic when a given pathogen flees blood. Yeah, this would be a dangerous association regardless of the infection being researched. Genes don't cause Lyme disease; a spirochete does.

So I am well aware I lack clarity. But if ME/CFS is caused by any persistent infection, isn't perfecting diagnostics more important than seeing if a certain gene variation leaves someone more susceptible to a pathogen? Yes, that's a big if, but so is assuming there is a genetic role here. We...

Yes, what is the CDC doing? And the NIH? Another OspA vaccine. It may not be a bad idea for someone considering taking a new vaccine to find out what happened with the first almost 25 years ago. Do the research as opposed to letting questionable sources do it for one.

Seems more prudent to focus on determining the cause(s) of any disease or syndrome, rather than some purported innate deficiency that may or may not be responsible for the disease presenting faster or worse in a portion of the patient population.

Good point. In the US, which tests for "Lyme & other-tickborne infections" are: a) unquestionable, and b) not private? Also, I'm unclear whether, when you write "misdiagnosed", that would include undiagnosed.

All-in-all, pretty good. About time. But the post-infection/post-injury section, towards the end, with its reference to a "hunkering down" mechanism, left me scratching my head and feeling concerned - almost as if we'd played a good game, but ended with an own goal.

Yes. That is not necessarily the same thing as labeling different types of fatigue. I fear that may prove to be the endpoint of efforts such as this.

Is it though? Or is it semantics and connotation/denotation masquerading as science? Are there different types of nausea? Or, instead, varying degrees and causes? Ultimately, isn't nausea a downstream effect? I worry the fatigue thing is a forever stretching, winding dead-end, deflecting our...

"Resting" in the conventional sense is not an appropriate word for us, as well. There is an implied sense of recovery in the word "rest". We don't recover; we just try to stop before we make ourselves worse. At best, we stop because we can do no more. But there is little in the way of recovery...

What's relapsed Lyme disease? 30,000+ cases of Lyme disease per year? It's widely accepted it's at least ten fold that figure. How odd.

We shouldn't lose sight of who it is that is whispering into Nath's ear.

And do what?

"post-infection" says it all. The implications don't need to be said.

What an odd way of practicing the scientific method. It's a model of assumptive reasoning. She says she has CFS patients. Boy, that's an interview I'd like to be part of. Better yet: Does she have any chronic Lyme patients? Any longstanding TBD patients? This model can only sustain...

I seem to recall reading that the leading cause of disability among veterinarians is bartonella.

I use to have bartonella. I still may even though I now test negative. But bart tests are notoriously bad, and only check for a couple strains anyway. Knowledgable infectious disease doctors navigate this issue by looking at vegf values. If you've elevated vegf, bartonella gets thrown into the...

@Hutan , that was very nice of you. I think Vegf may be relevant as a marker because of the cognitive decline many of us experience. So I think in many of us we will show low Vegf, which is fairly remarkable. It also would explain the hypoxia and low body temps (i'm often less than 97F). If we...

Sorry. I'm tired. This link is worrisome to me. I'm probably wrong. But who of us has tested our serum VEGF? I have over several years, off and on. What cursory searching I've found is that often it doesn't have a good outcome, at least with cognitive stuff. I test weird so of course I wonder...

Again, I am brought back to VEGF. Wish they were talking cognitive decline....

VEGF is going to end up being a thingee here...