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https://invisible.international/the-tick-borne-disease-epidemic-in-ireland-a-call-for-more-research/ Notes under-counting in UK and Canada as well.

I've taken LDN a few times over the years, with doubtful results. Still, there are so many reporting improvements with it that a smart trial would, I think, be a good thing. However, I cannot help but file it a bit with an arguably similar approach of treating Lyme with Plaquenil. Are we just...

Lot's of money in diagnostics or similar tools. I wonder if some questionnaires are patented or if the makers of the questionnaires receive royalties of a sort. What an evil mix. I have POTS and I almost feel assaulted after reading this. They slip in one or two words like catastrophizng and...

Bartonella for sure. Arguably Babesia, too, although this more closely resembles Long Covid in many instances. Most Borrelia iterations, e.g B Miyamotoi vs B Burgdorferi. As for organizations which represent them, any Lyme org like Bay Area Lyme or Lymedisease.org or GLA (Global Lyme Alliance)...

Sure. It certainly snagged my attention. The cynic in me says just because there is an established treatment for something, sadly, in today's medical world, that doesn't necessarily mean it works - especially when the brain is the "something".

A) Only 12 patients. A third dropped out. B) Substantial benefits? Qualify that, please, objectively. Where does placebo appear in this? Not placebo-controlled, you say? Comeback in 12 months and revisit, please. C) And one "post-Lyme" patient reported improvement? I'm sorry. Yale and Lyme - any...

What rubs me the wrong way here is that, perhaps inadvertantly, he's made a statement he cannot factually demonstrate yet. We may all of us in each of these diseases, have compromised immune systems which generate our symptoms. This may be what they ultimately prove. But I can tell you they...

Johns Hopkins not too long ago released a Lyme study that identified genes in Lyme patients that evidently were activated by Lyme as immune responses, or something along those lines. So these were genes that are coded to help fight infections, if my understanding is correct, and the effort is...

Yeah, so that's not even a thing, not even in Bethesda at the NIH. It's not a thing anywhere. How optimistic yet unlikely it would play out so neatly. I would find it unsettling if he actually used this wording.

Seems to have worked out in stellar fashion for the BPS folk. Although to be fair, they probably are well aware of the evidence. They just ignore it. In many ways, it appears for some of that psych crowd that it's not so much about proving their position's merits with science, rather doing a...

Why?

The CDC should never play poker. This is the opposite of a poker face.

Case studies with autopsies are not unknown, but yep, autopsies need to become a priority since the brain seems to be a logical hide and seek repository of pick-your-pathogen.

Well, there are plenty of diseases where the patient is severely disabled to the point of being bedridden with often no trace of the pathogen in blood or serum or CSF. I can think of at least four from the tick-borne disease category that qualify. Moreover there is evidence in some circles of a...

ILADS doctors are ones whose primary focus are tick-borne diseases. They are typically infectious disease specialists, but not necessarily.

I suspect if they add to their list of pre-specified predictors watching TV, playing games, and eating cereal, it may enhance the predictive value.

I think to do it right they'd need baseline scores for patients (e.g. old IQ scores or MOCA scores), and those are not always readily available.

Oh FFS, it's an absurdly inadequate and minimizing and condescending metaphor - one that should never, ever be used by so-called professionals as a lead for a serious study of decline in discrete cognitive domains. This is shameful. ETA: I know YOU'RE not saying that @MSEsperanza . :)

"Since persistent medically unexplained somatic symptoms and somatoform disorders bring about high costs for health care systems and are among the leading causes of disability (8), it is highly relevant to investigate psychological factors that characterize and influence these symptoms and...

Post-Covid. Have they demonstrated that persistently? That the virus is gone from every possible repository in a person? If they admit Covid can exist in priviledged sites, then it leaves the entire profession exposed to similar conclusions about other pathogens. There are too many horses in...