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Background – Long Covid is a complex condition characterised by symptoms that persist for weeks and months after the Covid infection, accompanied by cognitive impairment that negatively affects daily life. Understanding this complex condition is important for the development of diagnostic and...

It is an Indian website and basically all the Indian articles on ME/CFS that I have come across have been extraordinarily bad. I mean you can find bad articles everywhere but the ones coming from India seem to be uniformly very bad. The other day I posted one of them in one of the funny threads...

Btw, do we know what the normally experienced drop-out rate of similar interventions is in studies that are not about ME/CFS/long covid?

Study group: About PEM:

Abstract The presence of prolonged symptoms after COVID infection worsens the workability and quality of life. 200 adults with long COVID syndrome were enrolled after medical, physical, and mental screening, and were divided into two groups based on their performance. The intervention group...

"Since the COVID-19 pandemic, SARS-CoV-2 has caused unexplained, chronic, post-infection symptoms in survivors. The phenomenon, known as post-acute sequelae of SARS-CoV-2 infection or "long COVID," surfaced shortly after COVID-19 testing was introduced to the public, and doctors began noting a...

Context: basically you can't read anything about long covid in Hungarian media anymore (government or independent media, it really doesn't matter which one). I mean you can find a few articles sometimes that are translated from some foreign source about some LC research that made some waves...

OK, I've found the severe ME/CFS section but it wasn't easy, you basically need to follow the redirection from an otherwise dead link and then it is there...

The CDC's informational webpage about ME/CFS seems to be rewritten or at least restructured. I don't know to what extent it has been edited and how much new material has been added (or old stuff changed). At a click glance, a lot has remained the same in essence but again, I haven't checked it...

I see PEM as a collection of symptoms instead of a single symptom, so I didn't even realize it was in the list, I just went straight for cognitive impairment. :) Anyway, out of the single symptoms, cognitive impairment is the worst for me because 1) It is one of those symptoms I always have...

This year ME/CFS Awareness Day was a little bit more in Hungary than in the past few years. First, one of my group members, Angelina Zakar created a dozen pictures with simple messages on them for 12th May to raise awareness. These were all variations of the same thing: eg. "I have ME/CFS", "my...

From the Polish ME/CFS blog written by a patient: SCIENTIFIC MEETING ON CHRONIC FATIGUE SYNDROME AT NIGRIR Google translation: NIGRiR is fully committed to preparing to work with ME/CFS patients. Therefore, on May 15 at 11:00 there will be a Scientific Meeting focused on Chronic Fatigue...

Btw, now in hindsight I wonder why Nath was so reluctant to post it on a preprint server before publication. Was it simply because they anticipated criticism/blacklash?

Yes, I remember there was a member called @Rena who was actually looking for doctors familiar with ME/CFS in Lithuania. I don't know if she still checks the forum or not but I'm tagging her just in case.

Thank you. :) There are still some minor issues with it but it is much better than the original. Here is my letter to them pointing out the problems, so if anyone is interested, they can see what these problems were in the original version (ChatGPT translation, so far from perfect): I also...

Some good news: The governmental healthcare website Egészségvonal has updated its informational page on ME/CFS (written by the National Public Health Centre) after I sent them a letter pointing out in detail how much it differs from the current literature. Although I could still find a...

An article that summarizes the 1st Interdisciplinary Consensus Meeting on post-viral conditions in Austria. Here is the Google translated version:

Hyperbaric Oxygen Therapy Conference in Hungary Context: Nikolett Szolnoki, who offers this service, has been promoting HBOT as treatment for long covid in the media for a year or two now. The conference also took place where her private clinic operates. Key points: - They are (Szolnoki et...

From March but I only discovered it today (Google translated): ME/CFS: Neurology Society invites consensus-building meetings The Austrian Society of Neurology (ÖGN) invites you to an interdisciplinary “consensus conference” on April 19th on the topic of the multisystem disease ME/CFS. The aim...

From the Polish ME/CFS website I follow: Google translation: Everything indicates that this summer (2024) we will happily see the first clinic in Poland dealing with the clinical diagnosis and management of ME/CFS as part of NIGRIR - Warsaw, Spartańska. The department is still being prepared...