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"For the past year, as she oversaw Facebook’s flagship app and then made the jump to Instacart this summer, Simo has been quietly helping get a new women’s health startup off the ground. The Metrodora Institute, a for-profit clinic with a non-profit foundation devoted to research and advocacy...

Verywell Health: What Long COVID Awareness Means for People with Chronic Illnesses "Key Takeaways People in the chronic illness community are noticing similarities between long COVID and conditions such as myalgic encephalomyelitis (ME) and fibromyalgia. But people with chronic illnesses...

Short article on post-covid symptoms on one of the major news sites. It is a very good illustration of how long covid is viewed or treated here: it isn't even really named, only some of its symptoms get mentioned along with organ damage and other issues after being on the ventilator. Long covid...

Yes, I was thinking this almost reads like what I would write as a parody of BPSers.

So, I've launched the first Hungarian ME/CFS website. https://mecfs.hu/ It is the same as my Facebook page was, with mostly research and advocacy news summarized in Hungarian, but this way it is much more organized and with tags it is easier to look up things that someone wants to learn more...

I can't add much unfortunately, except that I have the same thing when I feel worse and this is something I've had since the onset.

Abstract Objectives This study aimed to investigate post COVID 19 symptoms amongst elderly females and whether they could be a risk factor for developing Chronic Fatigue Syndrome (CFS) later on. Methods This was a retrospective cross-sectional study, in the form of an online survey. A total of...

Abstract Objectives Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is often reported to be caused by an infectious agent. However, it is unclear whether one infectious agent might be the cause or whether there might be many different infectious agents. The objective of this study...

:thumbsup: It is not just photos of people I'm planning to use though but all kinds of relevant images (medical or science-themed, covid-related, etc, often quite abstract depictions), so the emphasis is not necessarily on pictures with pwME/ill-looking stock photo models.

I've mentioned the idea of asking people to provide their own photos earlier in this thread and also that while it is a great idea, the people in my (still relatively small) group tend to be on the passive side and have never really participated in such projects when I had similar ideas before...

Yes, it is indeed coming out of my pocket and I'm already spending a not insignificant amount of money on other things (Facebook ads in order to find pwME, as you literally have to find them one by one in the absence of any sort of previous platform for them), so I would like to keep the costs...

This is actually a bit of an issue for me too. I'm currently registering the first Hungarian ME/CFS website ever and I'm planning to post articles primarily there instead of posting things simply on Facebook as I've been doing until now. Of course I don't want to get into any kind of copyright...

Sorry for being probably too off-topic, but for whoever is interested: I started to dig around a bit and found some information: How Not to Be Misled by Disorders Mimicking Angioedema: A Review of Pseudoangioedema...

Yes, I'm one of those too, I have generalized swelling that fluctuates perfectly in sync with my other ME/CFS symptoms and which I never had before my viral onset. I understand this is not a common symptom but to me it is a big part of it (mine can be quite excessive and causes a lot of physical...

N=1, absolutely not scientific personal anecdote, without knowing anything at all about my MBL value: I was the type who fell ill at a ridiculously high frequency after my ME/CFS onset (EBV), in the first two years. As a result, I was terrified of infections because although all I got was the...

Abstract Background Public trust in the human papilloma virus (HPV) vaccination programme has been challenged by reports of potential severe adverse effects. The reported adverse symptoms were heterogeneous and overlapping with those characterised as chronic fatigue syndrome (CFS) and have been...

I know this is not news but a question but anyway: A member in my group who lives in Germany needs some help and asked me to ask German pwME for info. A doctor referred her to a CFS centre in Berlin but there they rejected her because she didn't have a viral trigger (she had gradual onset two...

Tamás Freund, President of the Hungarian Academy of Sciences, also a neuroscientist, finally addressed the issue of long covid today. I believe this is the first time when someone in a more "official" role did so. “As it has become known that Covid-19 can cause severe, sometimes long-term...

Recent news from Hungary: Article: Long Covid in children The first article mentioning ME/CFS after a month, on a health site written by doctors for the general public: The article is mainly about the studies that showed long covid is not very common among children, but it also details the...

Originally, my spike protein antibody test results after 2 Astrazeneca shots were around 32 BAU/ml on a scale of 21.8-3270 and I had no T-cell immunity. Now after my third vaccine, which was a Pfizer, it is 3262 BAU/ml. Even if the first result doesn't necessarily mean that my vaccine didn't...