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Management of patients with neurological diseases considering post-pandemic coronavirus disease 2019 (COVID-19) related risks and dangers — An updated European Academy of Neurology consensus statement Saša R. Filipović, Serefnur Özturk, Daniel Bereczki, Benedetta Bodini, Francesco Cavallieri...

Protest in Berlin: People who are affected by ME/CFS during a lie-in demonstration No touch, no light, no sounds - those afflicted with ME/CFS find their daily life severely restricted. This is the focus of a protest by those affected. - People who are affected by ME/CFS during a lie-in...

The Observer letters: ME: we need more funding and more research Two responses to Alastair Miller's awful opinion piece a couple of days ago. Alastair Miller claims there have been “years of well-funded research” into ME (“Maeve Boothby-O’Neill’s harrowing case highlights clashing NHS...

Personal anecdote, not about questionnaires but similar about gaming etc these: I was abused as a kid and there was this occasion when I was seen by a psychologist. I was quite little, definitely 10 or younger at primary school. I remember that I had to do a couple of different tasks that were...

iNews: I had ME and almost died – my doctors gaslit me There is a lot about Maeve in this article, clearly the current inquest into her death was the reason Lucy Rowett's story inspired an article too but Maeve's thread can get very busy, so I thought it was a better idea to post this article...

The Guardian: Maeve Boothby-O’Neill’s harrowing case highlights clashing NHS narratives on ME by Alastair Miller "Given this, it was perhaps sadly inevitable that some people would question whether ME/CFS was a “real disease” or was “all in the mind”. Indeed, the original description of ME...

This reminds me of the time when I sent a letter to the Hungarian Academy of Sciences after Professor Janszky, a neurologist, made same pretty horrible unsupported claims about ME/CFS patients at the long covid symposium of the academy. He was just regurgitating stuff Sharpe and the BPS crowd...

Just adding my recent anecdote about this. Background info: there is basically no original local coverage of ME/CFS or LC here. Almost all the articles you can read about these diseases here in the media are translated from foreign articles (from English or German-language media). Usually it is...

Another article in US News: COVID-19 Won't Raise Odds for Chronic Fatigue Syndrome: Study The news outlets are picking up the press release, more of these articles may come.

An article: Research finds no difference in chronic fatigue syndrome prevalence caused by COVID-19, other illnesses

Key Points Question Does prevalence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)–like illness differ between individuals with an acute infection–like index illness who are COVID-19 positive or negative? Findings In this cohort study of 4378 participants, the weighted...

This reminded me of the French animated series Once Upon a Time... Life that aired when I was little. All I remember now is the red blood cell characters always carrying oxygen on their back and that sometimes an invader arrived that needed to be fought (a virus, etc). It was for little children...

An abstract from the PhD Scientific Days in Budapest just a few days ago: Viral infection associated pediatric gastrointestinal disturbances in the context of the COVID-19 pandemic Author(s) Dr. Réka Garai1, Dr. Vivien Herczeg1, Dr. Fanni Kovács1, Dr. Anna Máthé2, Dr. Ágota Nyírő3, Dr. Péter...

BBC: 'I'm scared my daughter will die in hospital' A man says he is terrified his daughter will die in hospital due to what he says are failures in care by NHS staff. Pierre Naoum, 62, from Hounslow in west London, says his daughter Carla, 23, who was diagnosed with myalgic...

Yes, another endocrine disorder is hypothyroidism where you test your thyroid hormones for diagnosis. Then you get medication and you have to keep doing the tests to see if it works or you need to increase or decrease the dose, especially as time passes (first every 3 months, if it's good then...

These are the papers on ME/CFS in the references section: Apostolou E, Rizwan M, Moustardas P, et al. Saliva antibody-fingerprint of reactivated latent viruses after mild/asymptomatic COVID-19 is unique in patients with myalgic-encephalomyelitis/chronic fatigue syndrome. Front Immunol...

Samantha J. Russell, Karen Parker, Andrea Lehoczki, David Lieberman, Indu S. Partha, Serena J. Scott, Linda R. Phillips, Mindy J. Fain & Janko Ž. Nikolich Abstract Long COVID, also known as PASC (post-acute sequelae of SARS-CoV-2), is a complex infection-associated chronic condition...

My hairdresser is a racist far-right anti-science anti-vaxxer and very chatty (well, guess how I know these). The only reason why I go to her salon is because the salon is in our building, so I literally just have to go to the ground floor. I'm not sure I'd like to start getting mental health...

So for example here is the latest such update of the Google search algorithm, happening just now actually: https://www.searchenginejournal.com/google-launches-june-2024-spam-update/520281/ They keep saying these updates are against spam, AI, low quality content etc but you can find plenty of...

Can the Google algorithm be also responsible, at least in part? They have messed with changing the algorithm in the past year or two a few times and it really badly affected some websites, including mine (even in the past few weeks there was a huge drop in traffic). I don't even look at where my...