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  1. Sean

    An Open Letter to BACME re ME/CFS Guide to Therapy 2025

    The hope of the idea of a concept of a promise of a possibility of a theoretical recovery as defined in the most minimal and vague of ways.
  2. Sean

    News from Scandinavia

    How many attempts at proving their obsession are they going to be allowed before the rest of the world accepts they have not delivered, and are never going to? This stuff was 'promising' 40 years ago, and still is. They have made exactly zero progress in delivering meaningful benefits for...
  3. Sean

    An Open Letter to BACME re ME/CFS Guide to Therapy 2025

    Science is less about getting the right answer, and more about asking the right question (both theoretically and experimentally). It is even worse than that. They later re-defined recovery to mean the 'process of recovery'.
  4. Sean

    ME/CFS services in the United Kingdom

    They are not failing to see it, they are refusing to see it. There is no excuse left whatsoever for these clowns. The evidence is overwhelming. They are completely wrong, and have been since day one. The fundamental problems with their 'science' and the claims based on it, and the harms...
  5. Sean

    ME/CFS services in the United Kingdom

    *crickets*
  6. Sean

    An Open Letter to BACME re ME/CFS Guide to Therapy 2025

    Much thanks to the authors for this important and well informed statement. I can only hope some in power are listening. It is relevant to all ME/CFS patients, everywhere. This. And this. -------------- Perhaps if we all support this society, we could have a specialist medical home (Physical...
  7. Sean

    ME/CFS services in the United Kingdom

    recovery programmes based on each individual's recovery goals. Toxic exploitative nonsense.
  8. Sean

    Invisible Illness A History, from Hysteria to Long Covid, 2026, Mendenhall (book)

    What I call the Goldilocks solution. Which, of course, needs the careful guidance of an expert to find that perfect ever elusive balance between too little and too much, and who will never accept any blame if it doesn't work, which it never does, and especially if it makes you worse, which it...
  9. Sean

    A Short-Term Pacing Intervention in People with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Pilot Study in Portugal, 2026, Ribeiro et al

    with the majority adhering to the research protocol (n=7;53.8%). According to what measure? Not to mention that 53.8% is the bare majority (7/13), thus almost as many didn't adhere to it. The last session focused on the long-term planning that would allow the participants to envision their...
  10. Sean

    Genetic dissection of stool frequency implicates [B1] and other actionable pathways in the modulation of gut motility, 2026, Díaz-Muñoz et al (re:IBS)

    Genetic dissection of stool frequency implicates vitamin B1 metabolism and other actionable pathways in the modulation of gut motility Gut. 2026 Jan 20 PMID: 41558814 DOI: 10.1136/gutjnl-2025-337059 Cristian Díaz-Muñoz, et al. Open Access Abstract Background: Genetic...
  11. Sean

    Bryan Johnson—immortals program—1 million USD/yr

    Sooner these ultra-rich idiots take their one-way trip to Mars the better for humanity.
  12. Sean

    SequenceME genetic study - from Oxford Nanopore Technologies, the University of Edinburgh and Action for ME

    I would be amazed if it was not hardcore 24/7 lobbying. Never believe these clowns have conceded anything, no matter what they say, you only have to look at what they do. Their fundamental beliefs about ME/CFS have not changed one iota. If anything they just get more and more entrenched and...
  13. Sean

    Shingles vaccines, chickenpox, Shingrix

    Thanks a bunch, RFK Jr, and your batshit insane obsessions. What a legacy. :facepalm:
  14. Sean

    Effects of Cacao Flavonoids in Long COVID-19 Patients with Chronic Fatigue: FLALOC, a Placebo-Controlled Randomized Clinical Trial, 2026, Munguía+

    There are some weird people in the world. Such as those who need a scientific justification to eat chocolate without feeling guilty. :rolleyes:
  15. Sean

    Post-exertional malaise and the myth of cardiac deconditioning: rethinking the pathophysiology of long covid, 2026, Charlton, Wüst et al

    This is probably correct. At least some of what we might currently perceive as random is just insufficient understanding of the causal relationships driving it all. This. In fact we do it naturally, without planning, or motivating by an external force.
  16. Sean

    Post-exertional malaise and the myth of cardiac deconditioning: rethinking the pathophysiology of long covid, 2026, Charlton, Wüst et al

    This possibility was, of course, a bit of snark. If it were true then we would be self-healing instantly all the time and hence would not be sick!
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