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  1. InitialConditions

    Review Defining and measuring long COVID fatigue: a scoping review 2024 Thomas et al

    Oh dear. This is one of the two peer-reviews, if you can call it that.
  2. InitialConditions

    Review Defining and measuring long COVID fatigue: a scoping review 2024 Thomas et al

    "Given that fatigue is such a core component of PESE and long while PESE is not a type of fatigue in itself, in the studies that we have found here, it is often being used in, it is often being used as a measure of fatigue." Are you telling me 7 co-authors and 2 or 3 reviewers have read this...
  3. InitialConditions

    Review Defining and measuring long COVID fatigue: a scoping review 2024 Thomas et al

    I thought they were inventing a new thing for a second, but it's another typo. Quite a bad one too. I really wish co-authors and reviewers would read the paper in front of them.
  4. InitialConditions

    Review Defining and measuring long COVID fatigue: a scoping review 2024 Thomas et al

    Well, this grammar does not inspire confidence. Does anyone read the first line of the abstract these days?
  5. InitialConditions

    Review Interventions for the management of long covid post-covid condition: living systematic review, 2024, Zeraatkar, Flottorp, Garner, Busse+

    There's also another new, critical response from someone who seems to work in clinical evidence synthesis and medical statistics: https://www.bmj.com/content/387/bmj-2024-081318/rr-4
  6. InitialConditions

    Review Interventions for the management of long covid post-covid condition: living systematic review, 2024, Zeraatkar, Flottorp, Garner, Busse+

    @ME/CFS Skeptic's excellent response has now been published: https://www.bmj.com/content/387/bmj-2024-081318/rr-5
  7. InitialConditions

    Ultrasound-assisted preparation of sweet corn cob polysaccharide selenium nanoparticles alleviates symptoms of [CFS] 2024 Wang et al

    I have to admit: I did not have ultrasound-assisted preparation of sweet corn cob polysaccharide selenium nanoparticles on my bingo card.
  8. InitialConditions

    Review Interventions for the management of long covid post-covid condition: living systematic review, 2024, Zeraatkar, Flottorp, Garner, Busse+

    Another excellent takedown. I hope you can work with David and others to make sure all of this gets back to the editor.
  9. InitialConditions

    Positional vertigo/spinning nausea

    Jumping on this thread to say that on Monday evening I had onset of what feels like it might be BPPV. I was just led in bed watching Masterchef and I sat up or got up to the toilet and had the spinning room sensation. I guess it was more vertigo than dizziness. I thought I'd just go to sleep...
  10. InitialConditions

    A 24-month National Cohort Study examining long-term effects of COVID-19 in children and young people, 2024, Stephenson

    Not one mention of ME/CFS, CFS, or even 'chronic fatigue' — just one instance of 'chronic post-viral syndrome.' At this point it's deliberate ignorance and obfuscation.
  11. InitialConditions

    5HTP help to gather info on safety & what to watch out for

    I briefly took 5HTP in 2012 after my onset of CFS-like symptoms, many years before meeting ME criteria. I can't even remember why now, but I suspect low mood, given I didn't want to try an anti-depressant at that stage. I don't think I stayed on it very long, and I can't remember how it went. I...
  12. InitialConditions

    Review Interventions for the management of long covid post-covid condition: living systematic review, 2024, Zeraatkar, Flottorp, Garner, Busse+

    I have a feeling this review will be instrumental in pushing CBT/'rehab' programmes into the future. The review is terrible, and I'm not saying that just because I don't like its conclusions. It's really badly done — they've broken numerous standards for systematic reviews and evidence...
  13. InitialConditions

    2024: Call for a Research Case Definition Consensus Statement for ME/CFS

    I don't know if this is a new initiative or not. They seem to have lots of signatures already. Anyone know?
  14. InitialConditions

    2024: Call for a Research Case Definition Consensus Statement for ME/CFS

    Does this need its own thread in the Advocacy sub-forum? Seems important. Done
  15. InitialConditions

    Bio BS is worse than BPS--change my mind/prove me wrong

    I would agree that some of the low quality studies we see — pushing supplements and complementary medicine as treatment; focus on unevidenced hypotheses — is doing us harm in that they trivialise the illness and they also make dubious claims. On the latter point, I think of the example of all...
  16. InitialConditions

    Review Interventions for the management of long covid post-covid condition: living systematic review, 2024, Zeraatkar, Flottorp, Garner, Busse+

    My rapid response has been published online. I am just looking back at the REGAIN BMJ publication and it seems that they had to correct their main conclusions to state that the results were based on a specific population of patients, namely adults with post-covid-19 condition at least three...
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