"Given that fatigue is such a core component of PESE and long while PESE is not a type of fatigue in itself, in the studies that we have found here, it is often being used in, it is often being used as a measure of fatigue."
Are you telling me 7 co-authors and 2 or 3 reviewers have read this...
I thought they were inventing a new thing for a second, but it's another typo. Quite a bad one too. I really wish co-authors and reviewers would read the paper in front of them.
There's also another new, critical response from someone who seems to work in clinical evidence synthesis and medical statistics: https://www.bmj.com/content/387/bmj-2024-081318/rr-4
Jumping on this thread to say that on Monday evening I had onset of what feels like it might be BPPV. I was just led in bed watching Masterchef and I sat up or got up to the toilet and had the spinning room sensation. I guess it was more vertigo than dizziness.
I thought I'd just go to sleep...
Not one mention of ME/CFS, CFS, or even 'chronic fatigue' — just one instance of 'chronic post-viral syndrome.' At this point it's deliberate ignorance and obfuscation.
I briefly took 5HTP in 2012 after my onset of CFS-like symptoms, many years before meeting ME criteria. I can't even remember why now, but I suspect low mood, given I didn't want to try an anti-depressant at that stage. I don't think I stayed on it very long, and I can't remember how it went.
I...
I have a feeling this review will be instrumental in pushing CBT/'rehab' programmes into the future. The review is terrible, and I'm not saying that just because I don't like its conclusions. It's really badly done — they've broken numerous standards for systematic reviews and evidence...
I would agree that some of the low quality studies we see — pushing supplements and complementary medicine as treatment; focus on unevidenced hypotheses — is doing us harm in that they trivialise the illness and they also make dubious claims.
On the latter point, I think of the example of all...
My rapid response has been published online.
I am just looking back at the REGAIN BMJ publication and it seems that they had to correct their main conclusions to state that the results were based on a specific population of patients, namely adults with post-covid-19 condition at least three...
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