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Ron Davis still seems to be claiming that 50% of us have MS as well as ME. :banghead:

I get the impression the work on ME/CFS at Stanford is not particuarly well coordinated. I don't see research themes emerging. Are they trying to do to much at once? The abstract for this paper does not give me faith, and people here have rightly pointed out several errors already.

There are some websites that have multiple forums for different conditions. patient.info is one. The tinnitus forum I visit is based at https://healthunlocked.com/ so you could check there too.

This looks like complete overkill. You'd be better doing some basic stats—such as time series analysis—on activity data from apps like Visible or from activity trackers.

They've really done an excellent job of leaving the door ajar to a psychogenic interpretation of their findings/conclusions, haven't they? Particularly in the NIH press release. I actually don't mind the idea that the brain is stuck in some sort of loop / state due to the immune system going...

Why not also "Fatigue is the most significant predictor of depression". Am I missing something?

Well, at least it doesn't mention ME/CFS. We need to distance ourselves from fringe figures like Myhill.

I refused to complete these idiotic questionnaires on the grounds that (i) they can't distinguish between ME symptoms and symptoms of depression and/or anxiety, and (ii) I know they are useless and used carelessly as evidence of improvement. And yes, doing this at the start of every session was...

Dunno, just seems a bit Outlaw Medicine, Dallas Buyers Club, isn't it?

Imagine being well enough to even attempt to get to a spinning session.

Yep, possibly. I have read up on that. I do think I have some sort of fascial problem. I have some very small tender areas in particular muscles. But otherwise I don't have that much overall pain.

Ineresting. This sounds like a different issue. My lumps are not visible—they're under or within the skin/tissue layer, and not near joints. Nor are they as large as the ones you describe. Maybe we're all just lumpy.

I was at the doctors a few days ago about my recent decline. I had to attend for blood tests, and talked to my GP about this issue of 'muscle lumps'. They are most prevalent around my bicep muscle. She seemed to think it was possibly not the muscle, but rather subcutaneous fat. It's objectively...

Unfortunately, there's not much that can be done—often nothing. I have severe tinnitus and have had tinnitus of some level constantly for 12 years. It's a nightmare, so I sympathize with your friend. ME and tinnitus is the combination from hell. Tinnitus is a brain issue, though damage to some...

It's certainly in your interest to find out if it is covid or something else. It's not too early to test. I would do 2 or 3 tests over the next few days / week if you have access to rapid tests. I'm not clued up enough about antibody tests to provide advice. I suspect it's very complex, like...

This is the website of Tinnitus UK (previously known as the British Tinnitus Association, until this year). They are the main UK charity for tinnitus.

Thanks, but this page is just a summary of the article. I've just seen that the first link to the full article, on the right hand side of that page, is not paywalled (the second is). I am using a plugin to translate to English...

I've seen his name before, but I'm not familar. I just saw this: https://www.journalismfund.eu/supported-projects/chronically-tired-wallet-professor-de-meirleir Has anyone got an English version of this article?

Spot on.

I am also now blocked—by their main page and one of the RB team—since our discussion here a few weeks ago.