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Yes, was wondering this. There are two potential issues/considerations: (i) is it better to have 50 responses saying roughly the same things compared with just one, and (ii) the response form looks like it might assume responses are from individuals.

Is there really no PDF? EDIT: Ok, I can print to PDF, but strange to have no direct download link.

ha. good spot.

Would not be suprised if this was AI generated.

The 'doctor' guy is a chiropractor who also does holistic therapies: https://atlashealthmethod.com/about-us/

It says treatment plan, which is probably a mix of all sorts of medications/supplements/health + diet advice, similar to what they've always done at the Stanford Clinic.

Philanthropic spiel and American enthusiasm is a deadly combination for our language.

There was only one published, I believe. I suspect there was something going on behind the scenes RE MEAction response, possibly involving the paper's authors, and they curbed publishing responses. But the other responses should now be published.

Or vice-versa.

Not medical advice, of course. Just how I see it, and how I think doctors see it. @Jonathan Edwards might be able to help.

My experience with blood tests is that being slightly out of range is generally not (considered) significant and doctors are really looking for large departures from the reference range. They won't care about 5–10% out, but they will if you're 30, 40, 50% out.

It does seem like he really gets it. I have been thinking recently about how PEM is best thought about as a physiological 'state' that the body enters, and then (eventually) exists. And I was reading about physiological shock, and I thought about how PEM might be a less extreme/acute version...

Just the three instances! I think this shows a complete lack of care on the part of the writers, reviewers and editors. I have published, edited, and reviewed papers and I would be very angry with myself for missing three instances of this typo in just one paragraph.

Another Michael Maes paper. I do not trust anything he puts his name to.

Agree with both these comments. They seem to take pride in standing alone and doing everything by themselves. We don't need that now, we need to come together. There's no need for lots of different micro-conferences. Ideally there would be one or two large conferences per year in the UK to bring...

I just looked into this because people are now tweeting that 25% of ME patients have MS (and including Ron's slide). I think this is really poor from Ron. I have replied to the tweets in question. "This is almost certainly nonsense and, IMO, shouldn't be shared. This assay is not used to...

Sorry @ME/CFS Skeptic I can't answer your question!

Yep, this is a real problem. I had some counselling a couple of years ago and told them how confusing their scoring systems were—both GAD-7 (anxiety) and PHQ-9 (depression). I said: do you want me to answer based on my mental health symptoms or just in general (i.e., including all my ME...

Unfortunately, as most here will know, IiMER have had historical disagreeements with other charities, and they generally do not work together. I think that's a shame. I'm not sure if eventually they became involved in the Delivery Plan.

AfME advertised for a Research Director in Spring 2022 (https://www.charityjob.co.uk/jobs/action-for-m-e-/research-director/817657). I thought it was the type of post the larger charities needed. It was never clear to me whether they filled the role, but there is a Science Director listed on...