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I considered that but wondered if they degrade the video quality to keep file size down.

Cheers Adam. I was going to tag you to see if you had it!

If anyone is able to download from YouTube (for example, using YouTube Premium), please let me know. I'd like to save a copy of this.

Recently uploaded to YouTube. This was uploaded in 2021 by a different user, but was taken down shortly after due to copyright. "To be told 'your illness is all in the mind' or 'pull yourself together' is no help to people like Mollie Champion -14 years seeking a diagnosis and still not cured...

There's a sister set of articles (paper [Adamson] & response [Vink]) on CBT. https://s4me.info/threads/cognitive-behavioural-therapy-for-chronic-fatigue-and-cfs-outcomes-from-a-specialist-clinic-in-the-uk-2020-adamson-wessely-chalder.16242/page-8#post-346774

The Vink letter is here (and is itself a response to an article, I think...) https://www.tandfonline.com/doi/full/10.1080/09638288.2022.2048911

PS Can the title of this thread be updated to reflect the name change. Thanks. From the mods: done

British Association of Clinicians in ME/CFS (BACME) is developing 3 new Advisory Groups as part of its Patient and Public Involvement commitment.

@Jonathan Edwards are you involved with the NICE implementation plan going forward, or has your involvement finished? I am a little apprehensive that this is being done behind closed doors. I believe on the patient side this is being coordinated by Forward-ME and involves a service specification...

I wouldn't wan't the word 'malaise' anywhere near the name for the illness/disease.

One of my pet hates is academic studies where the abstract does not tell you the most important result/conclusion of the study.

Will leave this here and go for my tea, as I'm in a horrendous mood and might say something I regret. Mod note: This post has been copied to the thread about the article here: Health Sense article: Why deny patients with chronic fatigue syndrome treatments that can help?, 2022, by Peter White

This post and a couple of replies copied from the Paul Garner thread. Will leave this here and go for my tea, as I'm in a horrendous mood and might say something I regret.

**puts down shopping bags and breaks into song**

Managed to get the updated BACME name, but still got it wrong! Pete Gladwell is one of the more active BACME members, and has been part of the dysregulation stuff.

I think this will be coming within the next few weeks.

I've been following this up with Sonya, and I am getting the impression that there has been an active decision not to publish the meeting minutes, and that this has come from Carol Monaghan. I do not think we're going to see the historical minutes or future minutes readily and timely added to...

I would not be surprised by this. I have all sorts of issue with my vision, and particularly visual processing. There hasn't been much work on vision/eyes and M.E—except a few studies at the University of Leicester.

https://onedrive.live.com/?authkey=%21AGlC5G370Oiz4%2D8&id=BF7ACC05412B947D%21688083&cid=BF7ACC05412B947D Historical minutes for 2020–2021 meetings, uploaded by a patient (more here...

It suggests shift in gear, and also ambition, which is much needed. We're not going to get anywhere with £100k here and £100k there. I hope this pays dividends.