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New video on YouTube, which looks like a video version of the above PDF:

No, that was apparently somehwere in Liverpool. This BMJ piece mentions the NHS NICPM service in Leeds.

I know of one patient who came out of NICPM much improved, then started volunteering, studying again, even working a bit, until they had a major relapse/crash.

Because the pandemic made their waiting list even longer — 2–3 years from referral — which they felt was inappropriate.

I don't think so. It closed it's doors to out-of-area referrals a few years ago.

Conversation article here: https://theconversation.com/researchers-uncovered-hundreds-of-genes-linked-to-ocd-providing-clues-about-how-it-changes-the-brain-new-research-255572

I think from your qoute tweet you might be implying that we could look at disability/benefits figures to help with understanding prevalence figures. But it's just not possible — there are too many complicating factors: (taking PIP as an example) lots of people choose not to claim; those over...

I have gone for one of the highly rated but relatively cheap ones off Amazon. I'll see how it is. If it starts to blunt or otherwise play up I'll pay more next time.

thanks. don't think i have any like this that need cutting.

Has anyone got one that they would recommend? I think I could do with one. Might need to split small pills into quarters so I need something that can cope with that. Thanks.

But these are healthy controls, so you'd expect small increases in HR and very few to none meeting PoTS criteria. Unless I am misinterpreting your post...?

This is Action For ME, one of the two main UK charities, not ME Action. I definitely feel more comfortable donating to AfME than the ME Association these days.

Not a bad idea really. I have purchased some raffle tickets.

I think you used the wrong link Andy. Lottery here: https://www.actionforme.org.uk/support-us/other-ways-to-support-us/play-the-unity-lottery/

This is also the case for me. I'm not exactly sure what it's sensing — increased heart rate or perhaps something else.

Japan never lets us down.

I have an Oura 3. The battery life has recently degraded, which is a known issue after 2+ years. I have read that they might replace it for free. Interested to see your HRV data.

I can't get archive.ph links to work these days. I'm not sure if the site is down here in the UK or whether it's something in my setup. I use 12ft.io to view these paywalled articles.

Closing tomorrow (Aus time). Can be completed in around 10 mins, apparently.

It's an estimate based on the numbers in England diagnosed with the ICD-10 code G93.3 (Postviral and related fatigue syndromes), which includes ME/CFS, based on analysis of hospital data (not GP records). The study hasn't attempted to disentangle the known problems with misapplication of...