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mitochondria are not cells.

Get your wallets out lads (and lasses) - it's supplement and massage time!

https://www.quantamagazine.org/social-mitochondria-whispering-between-cells-influence-health-20210706 "Mitochondria appear to communicate and cooperate with one another, both within and between cells. Biologists are only just beginning to understand how and why."

https://www.quantamagazine.org/long-covid-how-it-keeps-us-sick-20210701/ "Understanding the effects of the COVID-19 pandemic on the population means knowing more than just the total number of infections and deaths. As with many diseases, after the acute infection has passed, a constellation of...

I think a Comms&PR initiative could be patient-led to begin with, with support from advocacy groups, patient communities, charities, and other formal bodies. At some stage early on it would need funding and professional guidance and help. We have thought about this as the CMRC PAG. We have a...

It looks as though it was the precursor to BACME (https://meassociation.org.uk/2010/06/questions-raised-over-training-role-of-new-body-for-mecfs-professionals/). Nothing to do with CMRC. The presentation was given to ForwardME in April 2009. https://www.forward-me.co.uk/10-th-july-2019.html...

Yep. We have to persuade everyone that this time those in authority got it wrong. I think it's doable. It's happening already in some quarters, e.g., with academics willing to speak up about the PACE trial and all its flaws. People are increasingly willing to accept that major institutions can...

https://valerieeliotsmith.com/2021/07/05/beyond-the-nice-guideline-mecomms-and-the-case-for-a-public-inquiry/ Lots to think about. We desperately need both a new comms & PR initiative and a public inquiry.

Yep. The release of the final guideline must be the start of a new campaign for properly funded, safe, adequate, specialist services - not some underfunded network of clinics with no central organisation, aims, or data keeping.

https://doctorswith.me/position-statement-2021-nice-guideline-update-on-treatment-and-management-of-myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs/

The mindfulness arm tended to be more mindful. :alien:

I've just got a Polar H10. I hope to track HRV and see if the hype is justified.

I don't think we know what exactly the PEM 'issue' is i.e., what was said that prompted a reanalysis, and by who? I can't quite work out the most probable explaination. If this was BPSers, what must they have said? what are they arguing for with respect to actual changes to the evidence base...

I had missed that. He was a co-opted member, wasn't he.

I don't think this is worrying. This 'stepping-out' generally happens to at least one member at each meeting, due to conflicts of interest.

Minutes for a series of four guideline committee meetings in late April have just been uploaded: https://www.nice.org.uk/guidance/indevelopment/gid-ng10091/documents It looks as though the meetings were to consider the recommendations in light of a new 'post-exertional malaise re-analysis'...

I really hate this 'app for everything' approach. My mum lives with IBD. She manages it with medication, but sometimes it flares for no good reason. I have no idea what this tool would offer her that she hasn't figured out herself through common sense.

We don't need it and we don't want it.

Have you not had a response, @Andy ?

This session (Session 3) is chaired by Wessely.