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  1. InitialConditions

    Cervical (neck) lymph nodes poll

    See my first post.
  2. InitialConditions

    Cervical (neck) lymph nodes poll

    To appease my curiosity, please answer the above poll. Please give this poll a miss if you've not noticed issues with lymph nodes in your neck. Thanks.
  3. InitialConditions

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Yep, four months seemed totally optimistic given the volume and detail of the comments. But why wait until 90% through those four months to decide a 100% extension (another four months) is needed!
  4. InitialConditions

    Potential role of microbiome in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME), 2020, Lupo

    It's actually Scientific Reports (a Nature Publishing Group journal), which is a journal that often publishes work rejected by the top-tier journals, such as Nature. But, it's still a high-profile journal.
  5. InitialConditions

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Yeah, I think the responses are under wraps until they are published with the guideline. I think we might have seen one or two, though I can't remember who from.
  6. InitialConditions

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    What feedback from BPSers have you seen? And where?
  7. InitialConditions

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    This is ridiculous! They knew the number of comments received back in early January. We are just over a week until the embargoed report is released and they've just realised how many comments they have? I don't believe it.
  8. InitialConditions

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Yep, it's definitely now being used to describe an acute reaction to exercise (the type you'd expect with cardiovascular impairment).
  9. InitialConditions

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Merged thread https://mylongcoviddiaries.medium.com/i-finally-have-a-diagnosis-for-long-covid-and-its-shocking-82ddcb214656 This is a personal blog about one patient finding the probable cause of her long-Covid symptoms (blood clots in lungs and fluid around heart). It's interesting because the...
  10. InitialConditions

    What are these second-long 'surges' I'm having before sleep when crashing

    Thanks for your comments. It's not a hypnic jerk - I do experience these and it's very different. These surges are totally within my body, and feel like a release of a hormone or chemical(?) @NelliePledge 's experience is the most similar to what I'm describing.
  11. InitialConditions

    What are these second-long 'surges' I'm having before sleep when crashing

    Another very hard to describe phenomenon. I get this when I'm crashing. Perhaps half-a-dozen times a year. It only happens in bed when I'm led waiting to fall asleep. I get this bizzare second-long surge that I can feel in my head (possibly traveling up to head from torso). I'm sure it's not an...
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