Without going too off topic, I would think the chance of discovering an overall test or drug to treat long covid is essentially zero, because the group is so heterogeneous, even compared with ME/CFS. So in that respect, Paul is probably right.
They have always as far as I know represented the staff working in the specialist NHS clinics. I'm sure you can join if you work outside the NHS, but it's very much revolves around the NHS clinics. I don't know what percentage of NHS staff in these clinics are members of BACME.
BACME Calls for Cochrane to Withdraw Outdated Exercise Review for ME/CFS
https://bacme.info/wp-content/uploads/2025/02/BACME-statement-regarding-the-decision-of-the-Cochrane-Collaboration_.pdf
"people with overweight" Is that a new thing? Bizarrely, I first saw this usage only this morning in the title of this article: https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(25)00355-1/fulltext
Scientific Reports, despite being published by Nature [Publishing Group], is not a quality journal, but this fact isn't really appreciated outside of academia. They accept a large percentage of submitted papers, very often publish trash, and the journal has been implicated in numerous scientific...
I listened to her audiobook 'It's All In Your Head' last year. Truly awful, and read by someone with the most snooty, patronising tone, which really fit the content. I could not finish it. More here: https://me-pedia.org/wiki/Suzanne_O'Sullivan
It's all very bizzare. LDN seems to have a cult following, much like ivermectin has. I think the LDN Trust puts out questionable literature to entice patients.
I developed Raynauds in my late teens or early 20s. I'm not sure I even have it any more as I don't go outside much, especially when it's cold. It never bothered me too much, but it seems to be indicative of some sort of underlying dysfunction that's likely auto-immune in nature.
https://www.bbc.co.uk/news/articles/cx2gky52p5qo
"About 15 years ago, Tim Holt-Wilson noticed a "gradual degeneration" in the warmth of his fingers.
The 66-year-old, who lives near Eye, in Suffolk, had already been diagnosed with the autoimmune condition Scleroderma - which caused stiff skin...
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