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  1. InitialConditions

    Involuntary movements: Seizures, tremors, tics, twitches, myoclonus

    I think this is no different to internal tremor/vibrations. When milder, I used to get them when I'd overdone it. I could feel it in my upper trunk. Now, with onset of OI/PoTS, this symptom is much more common for me and I feel it most in my left hip and left leg.
  2. InitialConditions

    Review Dietary Supplementation for Fatigue Symptoms in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)—A Systematic Review, 2025, Dorczok

    I think these studies are often done just so someone can get a publication. They add nothing, usually. Always the same story: the studies weren't good enough to say anything of value.
  3. InitialConditions

    United Kingdom - Suffolk and North East Essex ME/CFS services

    Excuse my ignorance, but is this basically a private contract, or can different hospitals 'bid'?
  4. InitialConditions

    Understanding Chronic Fatigue Syndrome – Workshop with Dr Bruno Silva [North Staffordshire Combined Healthcare NHS Trust]

    Anyone know who the bald-headed, possibly South African(?) psychologist is at 31:30? Says he was part of some group involved with the 2007 NICE guideline.
  5. InitialConditions

    Understanding Chronic Fatigue Syndrome – Workshop with Dr Bruno Silva [North Staffordshire Combined Healthcare NHS Trust]

    I'm not sure if it's exactly this part, but someone in the audience talks about how people with 'CFS' have [something] personalities. I can't hear what he says. Did you catch it?
  6. InitialConditions

    Understanding Chronic Fatigue Syndrome – Workshop with Dr Bruno Silva [North Staffordshire Combined Healthcare NHS Trust]

    7th National Neuropsychiatry Conference "Chronic Fatigue Syndrome (CFS) has long been recognised, and many different names and diagnostic criteria have been used to describe it. It remains an illness of uncertain cause. While fatigue is a very common presenting complaint in many settings...
  7. InitialConditions

    Any glass water bottle recommendations?

    Does anyone have a glass water bottle that they use to keep fluids up during the day? I want to get rid of my plastic Sistema one. Would prefer one with a flip lid, and also perhaps level markers on the side. Lots on Amazon, but you never quite know what you're buying on there. TIA.
  8. InitialConditions

    Exeter firm excited over long Covid test success [BBC News]

    Famously, no one has ever done that before.
  9. InitialConditions

    Exeter firm excited over long Covid test success [BBC News]

    There's nothing in the article to suggest the test can discriminate LC from healthy controls, because everyone who has had SARS-Cov-2 will have antibodies, right? I'm not quite sure what they are trying to do.
  10. InitialConditions

    Exeter firm excited over long Covid test success [BBC News]

    "Attomarker said of those tested 60% showed a poor quantity and quality of antibodies in response to the Covid variant encountered, which can be treated via immunotherapies and vaccines. "There was a hyper immune response to the infection for 15% of those tested, which means their bodies...
  11. InitialConditions

    Exeter firm excited over long Covid test success [BBC News]

    https://www.bbc.co.uk/news/articles/c4g7722wxj4o [Excerpt] An Exeter-based research firm has developed what it believes is a "world first" breakthrough test to help confirm the existence of long Covid in some patients. Attomarker, which specialises in health diagnostic technologies, said it...
  12. InitialConditions

    Persistent symptoms and clinical findings in adults with post-acute sequelae of COVID-19/post-COVID-19 syndrome in the second year....[], 2025, Peter

    Abstract Background Self-reported health problems following severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) infection are common and often include relatively non-specific complaints such as fatigue, exertional dyspnoea, concentration or memory disturbance and sleep problems. The...
  13. InitialConditions

    NHS England Launches New E-learning Module on ME/CFS, 2024

    I don't think FND overlaps with ME/CFS to a degree that warrants the former's inclusion in this document, and I think it's a mistake to put it in there. Aside from PEM, there's a distinct immunological component to ME/CFS — the source of 'malaise', sore throats, tender lymph nodes, etc. This...
  14. InitialConditions

    NHS England Launches New E-learning Module on ME/CFS, 2024

    Is it still in there? Does anyone have a downloadable copy of the course?
  15. InitialConditions

    Review Effectiveness of pharmacological therapies for fibromyalgia syndrome in adults: an overview of Cochrane Reviews, Moore et al., 2024

    Relief in just 1 in 10 patients seems staggeringly low, but the tone of the paper doesn't seem to convey this.
  16. InitialConditions

    Review Effectiveness of pharmacological therapies for fibromyalgia syndrome in adults: an overview of Cochrane Reviews, Moore et al., 2024

    Abstract Objectives To summarize and evaluate Cochrane reviews of pharmacological therapies for adults with fibromyalgia syndrome (FMS) pain. Methods Systematic search of Cochrane Database of Systematic Reviews to May 2024. Generic quality assessment used AMSTAR-2 criteria, validity checks of...
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