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Is it possible that some people with a ‘contested’ illness come to the mistaken belief that they have some form of Munchausen’s when in fact they have a genuine illness? When doctors repeatedly tell someone they have a psychosomatic condition is it possible that an impressionable person comes...

I agree that the MEA’s email sent to Valerie this week is a political non response, and think it is worth copying into this comments thread: [added - Am I reading too much between the lines or could this response be seen as a tacit acceptance of responsibility for the original contentious...

Though I do not agree with Valerie’s positions on all issues, I have found she almost invariably makes an important contribution to the debate and that her Blogs are well worth reading as part of achieving a broad understanding of the issues addressed. Personally I am not sure she is always...

although I signed the petition my thought was that this is a situation where a general petition hosting site petition such as change.org would be more appropriate than a UK Parliamentary petition. As already stated even if this achieves enough signatures to force a response from the UK...

Do you mean ‘pretty low tolerance’? I often miss out the key word in a sentence.

Doesn’t it have features of both pyramid selling and a cult? It’s structure is that of a pyramid selling scheme and I suspect for some devotees income generation is central but also you read of others displaying cult like behaviour where belief is their motivation.

Potentially very reassuring for those of us here in the UK where we have a government that increasingly by relying on herd immunity through vaccination and allowing the disease to spread almost unrestrained had made an enormous gamble about potential levels of Long Covid.

At the start of my ME, which was continuous with a bout of glandular fever/mono (impossible to say where one ended and the other began because of overlap of symptoms) I also tested positive for EBV. This was nearly 30 years ago so it may not be up to date, but I was told that the EBV virus is as...

Is the problem that increasingly research is being undertaken on the basis of questionnaires devised to supposedly show the presence of central sensitivity, then claiming that it exists in various conditions on the evidence of these questionnaires without ever attempting any independent...

Yet again no attempt to distinguish between correlation and cause and effect.

Are we seeing a naming problem? Some people use Long Covid to include any long term sequelae including the structural damage arising from the initial infection, and others seem to use it for just the ME type symptoms. I would agree it is too early to make categorical pronouncements on this. It...

Norway is in the European Economic Area, so it has to follow most EU rules, but it is not a full member of the EU. Having said that not every country in the European Union uses the €; the UK continued with £ whilst still in the EU, and Denmark continues with the Danish Krone.

Not a problem, I think most people on this side of the pond have a rough idea of the relative values of the € or the £ to the $, but for me the NOK is a mystery that requires currency converters.

When I was spending a maximum on dietary supplements in a vain attempt to treat my ME, some 25 years ago, I was spending (under the direction of a nutritionalist) some £80 a month, which using the Bank of England inflation calculator is the equivalent of about £160 a month now. So taking this...

I was wondering what is normal for any Norwegian population, particularly in relation to how far north they live and depending on the time of year, particularly with vitamin D.

I have not looked at the paper itself, but one might expect time post onset and severity to also link to taking supplements. Over the course of my ME, my maximum level of taking supplements was between two and four years into the condition, when I was trying everything and anything, but once I...

Thank you for all the work that went into this process.

I don’t know any details of the trial, if it is a trial, but a couple of people I know in high risk groups for complications from Covid here in the UK were contacted in December requesting if they test positive for Covid to immediately make contact to receive a (new?) drug treatment hopefully...

29 years post onset initial glandular fever (confirmed active EBV infection), symptoms continued unchanged, on to ME/CFS diagnosis some six months later (GP preferred term CFS because he regarded that as etiologically neutral, though different GPs, Consultants and Researchers have used...

There seems to be a fundamental gap in the theoretical underpinnings of much rehabilitation, it takes the idea that if you have a broken leg you stimulate muscle recovery and return to normal activity by physical activity and generalises it to other unrelated conditions, without asking why. For...