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Oh how awful, that switching medication caused your "three day horrors" @Invisible Woman :arghh:. Do you mind sharing what you changed from, and to? Horrendous that you were damaged in this appalling way. I can imagine feeling extremely discombobulated after a kaleidoscope migraine. Not so...

That's a good way to describe it, except I'd clarify that migraines can be very DIS-similar indeed! Some can paralyse you down half your body like a stroke! Most cause the most excruciating pain imaginable, but one type only causes psychedelic visual disturbances and nothing else (wish I had...

Excellent article, thanks @MsUnderstood. I definitely have problems in this direction Perfumes and aftershave are banned for my husband and teenagers. How amazing that there are public places where it's banned! Like cigarette smoke! An artificial-scent free world would be heaven. And mould...

I finally got to sleep! I tried a sublingual melatonin. I mg did the trick. I still woke up to anoint my eyes and went back off to sleep without the appalling wide awake nonsense! :party: I was still sleepy this morning, and dozed a bit, even after a cup of tea. But i got up at 11 and didn't...

Hello @Bill. Thanks. I cant get in to see a sleep doctor till April at the earliest. My breathing is silent when i sleep, but who knows.i could stop without snoring. Im delighted you sleep well now :) Please god by us all :hug:

I'm getting to the point where I might brave my GP. If she'll even give me Ambien or similar. I've been avoiding her. Thyroid med argument. I love that hug! Thank you! :hug: You are totally right - a bit of sleep makes a huge difference! I managed to have a nap today! An hour and a half I...

This is terrible. And a salutary lesson. We're relocating to the UK this Summer. I'll ask my GP here in Israel, (where my "Chronic Fatigue" was diagnosed after exhaustive testing for many other suspects, and then mercifully ignored), to leave those 2 life-condemning words off my notes. And if...

So grateful for you lovely people. :heart: No words now. Just Thank You. :heart_eyes:

I totally agree! People who do these fitness things BY CHOICE haven't the faintest notion of what a true physical endurance challenge is! They can opt out when it gets to the limit they can bear. We can't. We're stuck. I hope you improve and can get outside. Or just near the window? I'm...

Hello @Indigophoton @Invisible Woman and @NelliePledge ! I'm so sorry that I missed your messages on my thread this last week. I'm horrendously, torturously, sleep deprived and barely firing on any cylinders at all. Melatonin - 0.3 is the physiological dose. I gave up taking it. I should...

It's horrifying.

Hi @Indigophoton, I wish I could say I did. :cry: I'm so sorry you identify with my description. But also very grateful. :hug: Do you have severe ME? I'm so sorry, if you do. Mine was moderate. Housebound since the summer. Bedbound often. And that was before the insomnia. I cried buckets this...

@Louie41 Thanks! Being hormonal is making everything so horrible :(. I generally get through the hours and days with a fairly positive outlook. Despite my whiny posts. Or because of! 20 years ago, I'd play Tetris til my wired but tired brain ran down. Now it's too stressful! I've never tried...

Back to effing insomnia :cry: :mad: :thumbsdown: Had to take my 2-week-off break from bio identical progesterone. Only difference in routine. Back on it in a week. Hope that means I'll sleep again. 3 hours the other night, then slept OK-ish one night, then about 4 hours in 3 parts last night...

Very interesting @Sly Saint :thumbup: It's like what we do for migraines - ice packs on the forehead to numb out the pain and reduce swelling of blood vessels/tissues. On lieu of this super duper machine, I'm going to go to bed with an ice pack on my ridiculously insomniac brain tonight. Worth...

So glad you managed to get out and get the tests done @Wonko. I have Hashimoto's, diagnosed 15 years ago. I was under treated most of the time, because doctors insist on adhering to the TSH. Idiots. So I'm off-roading it now. I'm getting my own NDT. Taking lots of vitamins and minerals to...

STUFF SLEEP HYGIENE! Yesterday I got out of bed at 7:30pm. Had a good cry about how shitty my life is, cos even lying on the couch hurt. But was able to watch TV for some fabulous distraction. Ah, escapism! (Gotham, 4 episodes). Than half an hour of music listening via YouTube. Lots of bright...

@Louie41 you are a tonic! Porcupine in bed definitely the worst! Although going to the bathroom and kids getting in my bed, thinking it hilarious, as I stand there just dying while they giggle (aged 14 and 18, Jesus), is almost as bad! I also wash my hair once a week. Blessed with dry scalp and...

@Skycloud and everyone who liked my post - thank you so much for your support. Your words mean so much to me. I'm in tears! The struggle... The frustration. Being understood is everything. xxx

I think I slept better last night. Didn't lie awake for as long. Not so many night wakings. But I am immobile. Zonked. Eyelids closing, eyes sore, brain is porridge. Limbs are comfortably heavy. I'm usually similar to this, but with a thread of unease winding through me. And not quite so...