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@Dechi Thanks, that's great advice, and I've done it! Oh, damn. I should have written what I was doing at the time, and how long for. Next time. I saw a great doctor 8 years ago, really open minded and caring. And then he stopped seeing patients to devote his time to research and teaching med...

@Maria1 Thanks so much - I've not heard of this before! I'd love to understand what's going on - it feels like I get a cramp in my brain from using it, the way someone running might get a cramp in a muscle. I've been mulling a theory to do with the way lactic acid is produced in muscles from...

My ME is big on the neuroinflammation side, as evidenced by my chronic migraines. And it's EXTREMELY frustrating that I am fortunate enough to have a neurologist who invites me to appointments every 3-6 months to check on my migraines WHICH ARE CAUSED BY MY ME but I can't find a way to discuss...

Hello @Joan after 10 years with ME, I'm trying to work this out too. I've dragged my feet in pushing forward to get deeper testing which could lead to trying treatments that are out of the NHS type of box. Definitely get him tested for everything @Arnie Pye listed, plus a comprehensive panel...

Seriously excellent. Thank you @Cheshire

Thank you so much @alicec. A couple of hours ago I was despairing of my addled ME brain ever grasping this, but your straightforward explanation has helped me enormously. I've tried to wade through Ben Lynch's information, but there's just too much there, and how much is hype? How do we decide...

@Arnie Pye Adenosylcobalamin is entirety new to me. How much do you take of that, and the methylcobalamin? Thanks.

I'm so sorry to hear about your Aunt's declining health. She is lucky to have such a devoted neice. Lack of B12 causes serious nerve damage and may well be the cause of her POTS-like symptoms. Mine has been a problem to keep up, and I get dizzy, almost black out, and fall over until it's...

I used to be best in the morning, around 7:30 to 11am. Able to walk the dogs, maybe, use my brain a bit for health research etc. Then my head would hurt too much to be awake, so it was nap time till around 2pm. Foggy rest of day and evening. Enormous struggle to function physically, if at all...

@Arnie Pye Gob. Smacked. If this is true, when we come back to the UK in a year and a half, my husband and I will be quite the windfall for whatever GP practice we join. :woot: I guess they're being paid according to how much appointment time depressed patients are reckoned to take up? I do...

I think even doctors forget that our patterns of thinking are affected by deficiencies in the chemicals that power, and constitute, our brains, even while they're prescribing pills that focus on just a couple of neurotransmitters! B12 deficiency can present as depression - I've read a...

@strategist if you ever have a grey screen come down over your eyes for days on end, lose enjoyment in almost everything, don't want to eat/eat too much, see no future, feel everyone would be better off if you were dead... Then you're depressed. That's not just "lack of vitality." But are...

I'm so sorry you had such a miserable time with it. That's a fantastic name. Nearly as good as Dopamax for Topomax, (because it slows down your thinking, and word-retrieval issues - epilepsy drug I take for migraines and pain). I take it anyway, because the pros outweigh the cons. The other...

@adreno some of those alternatives don't look so bad to me. People look at these things from the viewpoint of a non-Majorly Depressed person, and/or with pre-conceived, One Flew Over The Cukoos Nest notions. Research has shown that half an hour of walking daily is MORE effective than pills. If...

@Pibee I keep reading that Lyme tests can be unreliable, so I'd guess your Lyme isn't all killed off, and you should still be on antibiotics, going by your symptoms! Incredibly aggravating to back slide after feeling so good. Have you read up about that issue? You sound extremely well...

@Jonathan Edwards Thank you for commenting. Oh dear, misinformation and confusion. Will need a pot of tea, a nap and to reread 10 times. :ill:

@Bill Ahhh, Someone important said, Good sleep is the foundation of good health. And how marvellous you're feeling the benefits! Definitely fair game to comment on something I've put out there - and I really appreciate your input. I have my husband's sleep study, and he somehow slept for 6...

@Pibee that's absolutely fascinating about your sleep normalising while on antibiotics. I've read about that happening to someone on the "(DSPS) Delayed-Sleep-Phase-Syndrome" Facebook group I'm a member of for my daughter, who's afflicted. Most people on that group seem to think theirs is...

Thanks @Arnie Pye In my case, I was diagnosed on the basis of a high level of TPO antibodies 14 years ago. Apparently, it's OK to have a very low number of TPO anti bodies, it's not all or nothing. I've read that this doesn't warrant retesting regularly or keeping an eye on. I just read this...

@Trish Here's a simple explanation of the info I found that fits my frustrating AWAKE sleep problem. Fibromyalgia and ME have many features in common, sleep problems are one of them. Research (I'll locate if you want, got it somewhere) has shown that people with Fibromyalgia often have...